Website

2007-10-31 21:05:37

Hi group,
I got back home yesterday to find that our website was deleted a week ago.
We were told that there was no problem running the site "for another week
or so" to give us time to find another suitable server. (Here I omit my
thoughts on this matter as they're unprintable).
We've had some suggestions which look promising. Some of the free web
servers want advertising on the sites or won't carry the domain name. We
can also host in the US cheaper than in Australia. One local provider
seems to offer cheaper rates. All options are currently being
investigated.
I want this back up and running on a secure and suitable server within the
next few days. I have full backups of the whole web site so will post
anything you want to this list in the meantime. Just tell me what you
need.
Chris.

Another List Complaint

2007-10-31 20:15:09

I can decide whether or not I want to go there.
Hope you're all having a good day today.
Carol Scott**

Thanks

2007-10-31 12:15:48

Thank you all for the warm welcomes. I really hurt today. Bending enflames
my cyadic nerve and pow....there goes my right leg.
Well, at least I have some flowers planted.
Peace,
Penny
Anthology@onelist.com
Spondylitis@onelist.com
orphankittens@onelist.com
Horseheads1979@onelist.com
youngchildrensbooks@onelist.com

I need opinions Re:Clindamycin

2007-10-31 04:21:04

Dear Group:
Help, I need some opinions/advice re: Clindamycin.
At the beginning of May I started a one week course of IV Clindamycin
(300, 300, 600,600, 900). Since then I have had once weekly IV Clindamycin
of 1200 mg. Before the Clindamycin I was feeling really
terrible. During the week of daily treatments I didn't feel very
well either but about a week after I started to have some good days.
After each weekly dose of Clindamycin I would feel not too well
for a day or so but this past Wednesday after my IV I started to
feel really terrible - I ached all over and my skin (which is fairly
tight and leathery all over)started to burn and prickle almost
unbearably. In fact I felt as if my whole body was swollen.
I tried to see if there was a rash but I couldn't really tell
because my skin has darkened since I have had this disease (I look like I
have just spent several weeks in Florida all the time).
Today (Friday) I feel much better but I am worried that I may
have had an allergic reaction to the Clinda rather than
a severe Herxheimer. My skin has been one of the main sources of
pain in my disease (burning feeling) but the prickling is new. I'm
wondering if I should reduce my weekly dose to 900 mg. or whether
I should stop altogether. Has anybody else with Scleroderma had this
type of reaction to Clindamycin?
Heather (Scleroderma Jan 1998, AP Oct 1998)

mycoplasma testing

2007-10-31 00:51:09

I am new to the list and have not yet begun AP. I have an apt with Dr.
Franco in 8 weeks. I wanted to start the minocycline before I went and I
remember reading a note from Franco somewhere that he wants you off of
antibiotics for 4 weeks before mycoplasma testing at the time of visit. 2
to 3 months is even longer as noted in the quote offered by Marks' post.
Does anyone know exactly what to do about this as I really want to get
started on the AP. I requested that I draw for the mycoplasma right now but
Francos lab said its to difficult to do by mail and iI will have to wait
until my appt.
Cindy

Prozac

2007-10-30 21:14:09

Denise, Jan
There has been a focused effort from some corners to slam Prozac. The
Church of Scientology for one, I believe, was blasting it a few years
back. Like all the drugs, it does not work for everyone and I'm sure some
people have adverse reactions. An immensly popular and profitable drug like
Prozac is apt to cause a stir of opposition. I have been on an off it a
couple of times within the past 10 years and have done very well. I also
know many people who do well on it. I don't believe it is worse than other
anti-depressants.
Ute
RA 3/98 AP 5/98

website

2007-10-30 16:17:11

I just remembered that onelist offers 5mb of shared file space to list groups,
could at least part of the protocol be posted there until more permanent
arrangements could be made? I am not pc-smart enough to do it but perhaps
someone else here is?

List complaint

2007-10-30 01:59:05

Hi,
I also really appreciate when a web site address comes with a short
explanation. I don't have a lot of time to surf the net, so I end up not
checking the ones I can't tell what they are all about. I'm sure I'm
missing some good information. I'm really impressed with all the
information you guys come up with. I wish I had more time!
Thanks,
Ute

metal toxicity site

2007-10-30 00:03:57

Here's a link to an interesting site with info on heavy metal toxicity,
including info on mercury fillings:
http://www.oceansidemedicine.com/ctp/heavymtl.htm

OT: Prostate

2007-10-29 17:01:56

Just got this tip on Prostate Support - thought it might interest some
of you.
PROSTATE SUPPORT WITH SAW PALMETTO HERB
By Sue Frederick, Editor-In-Chief, Healthshop.com
A study published in the Journal of the American Medical Association
has found that the herb saw palmetto appears to safely ease the
symptoms of benign prostatic hyperplasia (BPH), age-related swelling
of the prostate gland, without the dangerous side effects caused by
drug treatments commonly prescribed for BPH. "It's interesting how
studies seem to document what herbalists have known for thousands of
years," says Brigitte Mars, herbalist and author of the Herbal
Pharmacy CD-ROM. "In addition to helping ease BPH, saw palmetto is a
nutritive high in vitamins and minerals. It is also a rejuvenative and
will work to improve overall health." For more information on saw
palmetto, visit
http://www.healthshop.com/healthfact/default.asp?category_id=348&referid=tw
TIP: If the full URL above isn't hot, i.e., it "wraps" and thus loses
the tail end of the address, copy and paste it into your browser.
--
Regards,
Geoff Crenshaw, ACC

Mycoplasma testing

2007-10-29 14:57:39

I wasn't aware of this, but noticed it while reading an article on
mycoplasmas under Sarah's links:
"If a person is taking antibiotics, the testing will not detect the presence
of Mycoplasma in the blood. And, if a person has been taking antibiotics,
they must wait for 2-3 months after stopping the antibiotics for the test to
be accurate."
This quote is from the website at
http://www.networx.com.au/mall/cfs/myco.HTM . Some very interesting
information here.
http://members.tripod.com/~Mark_Holmes
RA 4/98 AP 7/98
Minocycline (Lederle generic) 100mg 2x/day; Lodine 400mg 3x/day
RA Chat - http://members.tripod.com/~Mark_Holmes/RA/ra.html

Good Nutrition [CAST IRON POTS COULD PREVENT ANEMIA - 05/28/99]]

2007-10-29 01:53:14

Note on iron deficiency

Excellent WWW sites

2007-10-28 22:05:22

Sorry to repost someone else's message but...have a look at these WWW sites!
(Particularly the leakygut one). These are some of the best descriptions of
the "viscous cycle" I've seen
(see below)

knee drained!

2007-10-28 20:08:43

Thanks to evryone who gave me advice about my knees. I had 1 drained several
hours ago. The doc stopped draining at 6cc's because it got painful to move
the needle. He had already filled the syringe with Depo-Medrol to inject and
I requested something like Kenalog or theTriamcinolone (sp). He said
Kenalog does not work in a capsulated area and he did use the Triam. I had 2
injections as trigger pts of depo-medrol in the shoulders yesterday and was
trying to get this knee healed without anymore of the strong steroid as Dr F
has warned me that Depo-Medrol should not be used like this Doc is using it.
So far it feels about 25% better ; thanks to all of you for the details you
gave me- it was a piece of cake. Knowledge sure can make one feel calm. I
bet my Doc would love to rip my computer out of here!!!!!!
Hope I did the right thing rejecting the depo-medrol in the joint and using a
lesser steroid.
Thanks,
Carol*

Talking Back to Prozac

2007-10-28 10:50:44

That's the title of a book by Peter R Breggin, MD. It will
probably be of much use to anyone who is interested in or
already on Prozac. As far as I know, it's available in any
bookstore.

list complaints

2007-10-28 10:25:10

Im asking nicely could we end the list complaining.Im quite tired of my mail
being loaded with so many.The points been made and taken.This is a wonderful
forum and I sincerly appreciate all involved
Jon

Prozac and arthritis?

2007-10-27 21:21:45

I quit taking my Prozac because some people said they made a connection
between it and their arthritis. At the time I asked if there was any
documentation. Is there? Does anyone know of any they could refer me to?
My RA is better but that could be due to the protocol but my mood is pretty
close to terminal. Can someone help me out with some information? I hate
to be putting myself through this emotional misery over rumor. I can't
remember who it was that said she had some documentation but she never got
back to me. I've looked all over but haven't found anything.
Can someone help me out with this?
Denise

Denise Jolly: Prozac Survivor

2007-10-27 18:52:10

I don't have time to read through these tonight, but you
might want to start here. And search on the web will unload
a plethora of information on Prozac.
http://www2.netdoor.com/~bill/prosurv/prosurv.html#Prescription
For Disaster...BusinessWeek 3/16/98

MTX/Dr. Franco

2007-10-27 14:55:59

I sent a copy of this reply to Mark to the group but it did not show up
in my mail so am resending it.
Ethel

Yes, we have an answer. I talked with Dr. Franco late today and,
briefly, here is what he said.
When patients come to him already on MTX and prednisone, his goal is to
try to get them off these drugs, starting with the prednisone that he
believes to be more dangerous to the patient than the MTX. He says when
a patient is on 10 mg. or more of prednisone "we are causing them
tremendous harm".
He commented that 95% of patients on prednisone will experience side
effects. A patient on prednisone for six months can lose one third of
their bone mass. Prednisone will affect sugar metabolism, can cause
high blood pressure and atherosclerosis, etc.
He stated even two to three weeks on prednisone will cause perceptible
and/or imperceptible side effects.
However, he said there are times when a patient will have fast
progressing disease, and in order to try to decrease the immune response
and avoid or minimize joint damage, he will prescribe the lowest dose
possible of MTX until the AP kicks in, advising the patient to be sure
to be tested regularly by their local physician for toxicity.
Hopefully, he can keep the dose low enough so as not to suppress the
immune system entirely.
He wants you all to know that his treatment is individually tailored to
the patient and is based on Dr. Brown's protocol, but there are times
when MTX may be added for a time in the patient's best interest. He
stated he does not pressure patients to take MTX and he respects their
right to refuse to do so.
Someone in the group asked me about using Zithromax with the minocycline
in treating scleroderma. Dr. Franco uses the Zithromax with minocycline
in treating RA, but prefers the clindamycin with the minocycline for
scleroderma.
In addition, recently a patient returned from seeing Dr. Franco
reporting to the group she had not gotten a prescription for the
antibiotic. He explained today there was no indication she needed one.
Ethel

Another List Complaint

2007-10-27 08:29:44

Hi Folks,
I figure as long as everyone is venting their current
displeasures, I might as well bring up mine. "Denise Jolly"
complained about the one liners (and very rudely IMHO) but
just what are other people's reactions to posts of nothing
but a web site. No clue nor rhyme nor reason as to what the
site is or what its benefit would be to me if I went there.
Am I to assume that because it has materialized in my mail
that it is relevant to me and automatically click to go
there? Don't get me wrong. I want to know about useful
websites. But could folks please at least tell me what the
site is about so that I can know if I really want to go
surfing that direction or not? Just a one-liner, a title,
something to go on. I don't need a synopsis or a review.
And believe it or not, those of you who go to the trouble of
referring the site to the list, I know you're doing us a
favor and I do know it's a pain in the pitooti to add a
message to explain it. But frankly my dears, I find them
more irritating than one-liners. At least a one liner gives
me a coherent sentence in English versus the jumbled code
that a website address is. If I'm a lone voice in the
wilderness on this one that's fine and I'll keep hitting my
delete button. But if there are others out there having the
same problem, please make yourselves known.
Best - Jan K

Greetings

2007-10-27 03:42:11

Hello. I have just joined. I have Fibromyalgia, Ankylosing Spondylitis,
and chronic fatigue syndrome. (Not to mention high blood pressure, lots of
allergies and plenty of skin problems, and I'm overweight, too boot!)
I have skin rashes like the dimes described, and I use cortizone cream on
them. They usually don't itch that much, but they get very red. I also
have excema behind my ears.
I have started a list one onelist called Spondylitis@onelist.com. If anyone
one here has spondylitis and is on another list please let me know. I am
looking for some coping ideas. It finally dawned on me that I am not going
to get better someday, so I need to manage my movement and symptoms as best
as I can.
Peace,
Penny
Anthology@onelist.com
Spondylitis@onelist.com
orphankittens@onelist.com
Horseheads1979@onelist.com
youngchildrensbooks@onelist.com

do we have any experience with pregnancy and ap

2007-10-26 18:48:14

I have someone that was on the ap and became pregnant. She is now off
everything but is terrified that all her symptoms will take off. She has
Scleroderma. She has heartburn again but I figure all pregnant woman have
heartburn??
Any help in this area?
Thanks,
Donna
Ottawa, Canada
Scleroderma, Jan.95, AP Oct.97
(My Story) www3.sympatico.ca/mousepotatoes

scaly skin

2007-10-26 11:57:52

Group
With all the talk about the skin rashes I would like to see if someone
can help me with a problem I am having.
I have always had dry skin in the winter but since this last Nov. I
look like I have dandruff all over my body. It started right after I had
two surgeries and at the same time I started taking Minicin. Also at the
same time I went into the worst flare of my life, and It hasn't ended
yet. I also started getting more joint injections and taking a low dose
of prednisone- 5 to 10 mg. Does anybody know which of these could be
causing this? It is really embarrassing because if I have my legs on a
recliner or sofa there is dead skin all over it when I get. I saw my gp
tues. to get a script for clindy and zithromax and she asked if I had
ever had a thyroid test. I am not constipated or overweight and I
thought those were the most common symptoms. Of course she was in a
hurry and we didn't discuss it too much. Did get the scripts though and
took 1200mg clindy yesterday. By the way the drug store only had 150mg
so I took 8 at once. Was that right?
Back to the thyroid thing, some of you will remember a while back we
discussed low body temp. and taking Armour for this. Mine does
consistently run low and I took it for 2 weeks until my RA dr. said it
can cause osteoporosis too, so I quit. Has anyone any info about this?
Helen, RA 20 yrs. AP 6 mo.

Lupus and AP/Dr.Chiu,Ethel or anyone

2007-10-26 07:24:01

Hi again,
My dear friend with severe Lupus started AP last Dec with Doxy.The go slow
method seemed to agree with her and she was doing OK.In Mar she added oral
Clind.She inadvertantly followed the IV protocol and took 300mgm MT;600mgmWT
and 900mgmF (orally).In spite of that she was OK and proceeded to take Clind
orally 1200mgm once a week.Soon she developed a Lupus herx or flare.Being
determined she continued with 1200 mgm once a week.She became very short of
breath(has been told she has 50%scarring in her lungs) so upped her Pred from
7.5 mgm to 15.She felt very poorly so was to receive 1000mgm of
Solu-Medrol.After one treatment her blood pressure rose and she is now on
antihypertensive,diuretic and bed rest at home.Once this was communicated to
me I advised her to withold her Clind last Sun for a wash out
period.Questions:
1) Is this a common or known Lupus herx?
2)Should she withold Clind again this Sun or even longer.(eg for months?)
3) When she retakes Clind would a very small dose like 150 mgm to start with
be appropriate.
4)Is there something positive in this?? Was it working but she was taking too
much??
Dr.Brown tallks about people with long term or severe disease needing to be
careful as they can be so sensitive.I guess this is an example.Thank you for
your time.
Sincerely,
Lin

Need advice- and your experience

2007-10-26 05:03:45

Grp:
As I posted yesterday- I am having tightness over both knees and mushy
looking. Well, I went to my RA doc and said that both knees have fluid - one
severe and the other getting there. He gave me a trigger pt shot in the
shoulder (my shoulders are always bad)and is hoping for sytemic relief in
the knees. Said to come back next week if the fluid does not leave my knees.
He said the depo-medrol in the shoulder will help the knee. He also said it
is very painful to have the knee drained. Is this true? He said after he
drains it he then injects a med into it- but not depo medrol but did not
elaborate.
Okay gang, I literally can not walk. My legs are so tight I feel like they
will shoot off. I can't pull myself out of any chair as my shoulders are so
bad can't brace my hands on sofa to push off and with no power in the legs I
can not move. I just called and insisted I get at least one knee drained
tomorrow as I can not stand this pressure feeling until Tuesday.
Can someone that has been throught this please write me. Does the fluid ever
go away by itself? Is it very painful to drain it? And should I have them
both zapped or just do 1 knee and see what happens? ****Also, is this a
normal thing that RA patients get?
My doc shoots from the hip most of the time and I am thinking he was in hurry
to go to lunch today and did not want to take the time to drain them.
Thanks,
Carol* RA 4 yrs

Messages from the young at heart

2007-10-25 22:32:17

stories. Thought you might enjoy these.
Paula
Subject: Messages from the young at heart

New Cox-2 inhibitor drug

2007-10-25 15:53:33

This may have been posted previously, so please excuse me if this is a repeat
posting.
The following is an excerpt from Dr. Mercola's newsletter of April 25th. I
have not copied the entire article. The most important thing in the article
is Dr. Mercola's comments concerning new drugs and the ulterior profit motive
and possible deception of the drug companies. This is something we all have
to be more aware of. Hooray for Dr. Mercola for speaking out on this subject.
Better health, Al

Dr. Franco and metho

2007-10-25 03:18:33

Did we ever get an answer as to Dr. Franco's reason for using methotrexate?
Here all along, I was thinking that Doc Franco was going to be our savior
and now I read this. I'm guessing he is giving this to someone who has a
serious case and he wants to prevent further damage quickly. But how does
suppressing the immune system work in conjunction with eliminating
mycoplasmas? Can both work together? I thought that was a no-no. I am
quite interested in hearing the answer to this question - when I fight my
own doctor against using metho, I want to feel I am right - now Doc Franco
is confusing the issue - at least for me anyway. I feel my case is turning
to the worse as well and am concerned at times that the minocyline is not
working fast enough to stop the damage. Am I being foolish not to do what
Dr. Franco is suggesting? Perhaps Dr. Chiu can offer some insights on
this?
Mark
http://members.tripod.com/~Mark_Holmes
RA 4/98 AP 7/98
Minocycline (Lederle generic) 100mg 2x/day; Lodine 400mg 3x/day
Herbs- boswellia, ginger, circumin, evening primrose oil ; Zone Diet (lost 6
lbs in 3 weeks!)
RA Chat - http://members.tripod.com/~Mark_Holmes/RA/ra.html

Athritis Trust AP

2007-10-24 21:00:38

Here is the complete study of the shorter document from the Arthritis
Trust. It is found at garynull.comRheumatoid Diseases Cured at Last in
his documents page. Please read all of it . I printed it out, 173 pages.
There is so much wonderful information on it. It is a must read. That
form of AP has worked for many people. Don't discourage people from
finding something that might work for them The AP is the same it just
uses an other family of antibiotics the" Quinolens". Regards, Yoly
(yolanda)

how to decide where to direct posts

2007-10-24 18:17:02

Sorry everyone, just one more comment on the 2 groups. When I joined 18
months ago, I started to follow, for the most part, a simple principle: is
what I want to say possibly helpful to a lot of people in the group (i.e.
information, caring, emotional support, encouragement)? If so, I posted to
the group, if not, I posted to the individual(s) concerned. It has worked
well for me, I think. I have received many supportive e-mails from people
who seemed intuitively to be following the same guideline. My call for help
went out to everyone. The personal messages came back to me alone. And
sometimes, good things happen that need to be celebrated by and shared with
everyone. I know I have received encouragement from reading these messages
which were about others' successes, but which gave me hope too.
Discussions about bears, weather, cars, flowers, day to day life are fine in
APchat and in private e-mails. But please don't ever be afraid to be
supportive and encouraging in the rheumatic group on this journey we share
toward healing with the help of the AP. We are here to learn and to help
each other. Let this principle guide your comments.
Linda

Dr. list add one...

2007-10-24 08:57:28

I just received permission to refer anyone wishing to do the AP to
River View Health Clinic
301 Ocean Ave.
Raymond, Washington. 98577
Tele.# 1-360-942-3040
Ask to speak with JOHN JOSEPH, A.R.N.P.
Explain your flavor of this disease and make an appointment...
It doesn't matter where you are from, but around Western Washington it is worth
the drive over to the coast. I would say it is about a three hour drive from
Seattle...
Cheers...George... E-mail me if you wish more info....

rash

2007-10-24 04:39:00

A friend who has been on mino for nine months is presenting with rash around her
neck and shoulders. I'm sure this has been discussed before but I don't
remember what advice was given. I have suggested to her that a change to doxy
might be of some help. Any suggestions from the group will be appreciated.
regards, Bob RA 17 years. AP 23 months, 100mg Mino MWF
I have used 100mg and100mg of doxy each MWD. Herx type reactions force me back
to mino only.

water on the knee

2007-10-23 22:58:04

I have been experiencing extreme tight knees- one worse than the other. I
have never have any feeling like this before. It is tight about 4" above the
front of the knee and goes down over the whole knee and stops about 4" below
knee. When I say tight- I mean I can not straighten it completely or bend it
all the way. No pain just so compact feeling. I remember strattling a
lounge chair several times over the weekend when trying to scoot back on the
chair and I know this was a different position for my screwed up body. It
has been almost 48 hrs hours and getting tighter. Does this sound like fluid
on the knee that I have heard some of you speak about? What can I do for
this very uncomfortable feeling?
Thanks,
Carol*

sjogren's syndrome

2007-10-23 21:34:58

Hello all,
I'm happy to say that even though I'm not on AP, I seem to be in
a remission of sorts from my arthritis. I had that nasty flare
after a severe drug reaction, and the pain in my hips and
shoulders was unbearable for a few months. Now I just get the odd
ache here and there. I guess I keep hoping that the flare was
truly from a reaction to the drug I was taking. Only time will
tell. I still plan to go on AP in the near future, because of my
history of juvenile arthritis.
Unfortunately, I am have beginning to experience dry mouth, eyes,
skin and another unmentionable place (he he). I've always had
somewhat dry eyes from years of contact lens use, but never like
this. Same with my skin. I've always had very smooth, somewhat
oily skin. But in the past six months the surface had dried out
like crazy, is so dull and cracked looking and feels tight all
the time.
I fear that I could be developing Sjogren's syndrome, but some
days are better than others, and I'm not sure if that is common.
For awhile, I thought I was just being paranoid, but these
symptoms are beginning to interfere with my life. My dentist told
me months ago that my mouth looked very dehydrated, I told her I
drank coffee all day and rarely any water. So she told me to
drink 8 glasses a day, but it's doing nothing to improve the dry
mouth.
I'm thinking of asking my family doctor to test me for Sjogren's,
as my rheumy doesn't take any of my problems seriously because my
blood tests are normal. What sort of blood or other tests should
I be asking to have done for Sjogrens?
Thanks,
Kyla
celticfox@...
http://www.attcanada.net/~celticfox/index.htm
!!!!!!!!!!!!!!!!!!!!!!!!GO LEAFS GO!!!!!!!!!!!!!!!!!!!!!!!!

Suggestion

2007-10-23 09:28:41

This is just a warm friendly suggestion. This is not meant to be picky or
fault finding but only a good habit to get into.
When we post long letters could they please be broken down into paragraphs to
make reading them much easier? Has anyone read a book or magazine where the
whole book or article is in one long paragraph?
Thanks bunches, Anita

Use Paragraphs in Long Posts

2007-10-23 08:49:37

Hello Anita,
That is a very good idea to break our posts into paragraphs. I think since
e-mail is generally thought to be a "quick note" sort of correspondence,
many of us tend to forget to follow letter writing etiquette when our
messages lengthen.
Thanks for the reminder!
Kari

Queston/ Connective Tissue

2007-10-23 03:42:17

"The joint seems to be ok,
but the swelling is making it stiff.It is right about the kneecap on the
right side. "
I have exactly the same thing. I even went to an ortho doc a few days back to
get it checked out, cause it keeps popping in there. He said there was
definitely something there, but couldn't tell if it was a loose bone chip, or
fibrous RA tissue. Told me to continue on for 6 weeks and then he would look
again and take an MRI or scope it. But like you said, when I stand up, the
backs of my knees are very stiff. I have to stand there for a few seconds
before I can take a few steps.
http://members.tripod.com/~Mark_Holmes
RA 4/98 AP 7/98
Minocycline (Lederle generic) 100mg 2x/day; Lodine 400mg 3x/day
Herbs: ginger, boswellia,circumin, evening primrose oil
RA Chat - http://members.tripod.com/~Mark_Holmes/RA/ra.html

sorry, protocol question again

2007-10-22 14:17:15

Ok,
My mind has been Maui mush for a while now and I'm just getting back into the
swing of things again.
While the site is down did anyone get a file of the protocol etc.
I have 5 megs of space on my website. Can I set up anything on a temp basis?
Donna
Ottawa, Canada
Scleroderma, Jan.95, AP Oct.97
(My Story) www3.sympatico.ca/mousepotatoes

www.arthritistrust.org

2007-10-22 13:46:28

Hi Kathryn and the group.
I took a look at the site http://www.arthritistrust.org and here are my
thoughts.
It's looks along the same lines as Dr. Brown but I couldn't find the info I
wanted.
I was frustrated with how you have to scroll back and forth to read it and I
couldn't find a protocol. I thought this made the site less professional and
thus making the treatment look suspicious so I telephoned the place and spoke to
the receptionist. She didn't have a clue. She told me she would have someone
call me.
I am not surprised that the person answering the phone was inexperienced since
the site relies on donations. However I have a "vested" interest in how the
public views a therapy that is pretty much along the same lines as Dr. Brown's
and I get very protective of what others think of it.
So...I will talk to them and investigate further.
Did anyone else get annoyed at the center panel or am I just losing my mind??
Donna
Ottawa, Canada
Scleroderma, Raynaud's 01/95, AP 10/97
(My Story) www3.sympatico.ca/mousepotatoes

Enquiry from Rheumatology Students

2007-10-22 03:52:24

Ethel, Chris or Dr. Chiu or anyone else,
I've just received two letters from Rheumatology students in Korea asking
for information about the AP.
Could you reply to them please as I can only write as a patient.
Thanks,
Jude.
......................
X-From_: major96@... Tue May 25 19:26:35 1999
X-Envelope-To: <judy@...
Date: Tue, 25 May 1999 20:21:16 +0900 (KST)
X-Authentication-Warning: mail.kebi.com: www set sender to major96 using -f
Subject: please help me
From: "Choi il-hun" <major96@...
User-Host: UNKNOWN
Reply-To: major96@...
To: judy@...
X-Mailer: KEBI WWW-MAIL [version 1.0]
hello!
I am sorry for sending message rudely.
I am a student studing the medicine in kyunghee medical college, seoul,
south korea.
I study the rheumatology. But, the recentry information is very rare. I am
interested in recently rheumatologic study associated with mycoplasma
infection.
My texts have no information with these. It says that rheumatis has unknown
cause(unknown inflammatory action or autoimmune-disease), and is treated by
anti-inflammatory drugs or immune-depress agents. But, internet information
says that it is mycoplasma infection, and is treated by antibiotics.
Please help me.
Please send some advice or information.
I will wait your message
Thank you.
--- This e-mail was sent by FREE KEBI Mail System at http://mail.kebi.com/ ---
..............................
X-From_: xtracooljay@... Wed May 26 17:14:23 1999
X-Envelope-To: <judy@...
X-Originating-IP: [203.239.149.15]
From: "jai" <xtracooljay@...
Reply-To: "jai" <xtracooljay@...
To: judy@...
Subject: please give me some advice...^^
X-Mailer: Daum Web Mailer 1.0
Date: Wed, 26 May 1999 17:09:10 KST
dear Dr.
hello,my name is hyukjai choi.iam a student of kyung hee COLLEGE OF
MEDICINE IN KOREA
right now,I STUDY ABOUT RHEUMATIC ARTHRITIS.I AM SEARCHING INFORMATION
ABOUT R.A.
I HEARD ABOUT ANTIBIOTIC THERAPY.SO,I STUDY MY INTERNAL MEDICINE BOOK,And
i search information about R.A.
but i don`t know about antibiotic therapy of R.A
Please send me some information or advice.
if you send something,it help me really much.
i am sorry for sending a message rudely!!
i am waiting for your return message...
thank you...
==================================================
Æò»ý ¾²´Â ¹«·á E-mail ÁÖ¼Ò ÇѸÞÀϳÝ
http://www.hanmail.net
......................................................

Out of the Closet

2007-10-22 02:46:56

Hello All,
I have been lurking behind the scenes for many months now and want to thank you
all for the great advice and support I have received. I now need to ask a few
questions of the group. I have had RA for almost 14 years and have been doing
200 mg minocycline MWF (generic, not Lederle brand, which I found out recently
is a no, no!) for almost one year. I basically found a D.O. in town that I
took all of the info from the Roadback Foundation and begged her to do it with
me. She was very open minded and agreed, after having me sign paperwork stating
that it was not FDA approved, etc. I did not care about that, I was just
convinced it was the right thing to do. I had been on 15 mg mtx weekly, 75 mg
indomethacin twice daily and prednisone (oral and injections as needed for 10
years prior to that.) I quit mtx cold turkey and now take the nsaid and 10 mg
of prednisone daily. I am very strict with the original diet, no sugar, dairy,
trans fats and caffeine. I had a **MAJOR** herx about a month into the AP. It
lasted almost a month and I did the peroxide/epsom salt baths which seemed to
help somewhat, but then it finally subsided. I am feeling SO MUCH BETTER and
have every intention of doing this as long as it takes. But I feel as if I've
reached a plateau. I know I need to try to decrease the pred, but am afraid to.
I see my D.O. on Thursday and have been considering requesting another
antibiotic TTH as some of you have been doing to "kick it in the pants". I'm
afraid she might be reluctant to do that as she is unfamiliar with the AP. I
would really like to do the IV's, but she has never warmed up to that. So
here's my questions: What do you think would be best, zithromax TTH first and
what amounts? How long does one do this before they try the IV's? They are
apparently not making the indomethacin anymore from what my pharmacy says and
she wants to switch me over to Celebrex. This is scary as I had gone thru
umpteen nsaids before that one worked for me and has been doing the trick for 10
years. Has anyone had any luck with Celebrex? How about any side effects? I
know that the indomethacin is a particularly nasty nsaid and Dr. Leo Galland
warns that is might contribute to "leaky gut". How does one know if they have
the "leaky gut" or candida and do you just start taking this olive leaf extract
to see if you start feeling better? Is anyone in the group seeing Dr. Gary
Sladek in the Orlando area? I saw that he is on the list recently and thought I
might ask my D.O. to refer me to him. But only if he is knowledgeable with the
AP and willing to go farther with me if needed. Also, since the website is
down, can someone send me the protocol and the part where it talks about "the
next step"? I would appreciate it so much. I again thank you all for your
support thru all of this, you have really been the inspiration to stick with it.
I hear all of the positive stories and am so encouraged. Sorry this took so
long, I guess I made up for lurking all of those months!! :0)
Dawn

Rash and herx? Or bad diet and no sleep?

2007-10-21 15:59:48

Hi everyone.
Well, looks like I spoke too soon. After three weeks on AP I felt like a new
woman, till this morning. I woke up with sore wrists again, and my ankle
felt worse, and most significantly my energy was really down and I felt
irritiable and depressed.
Last night, significantly, I found a mild rash on my right arm. This was the
2nd day I was up to 100 mgs. I saw that a skin rash is a common side effect
of minocin.
My questions are this:
1) What about the rash? Is it part of a herx, a Minocin allergy or what?
Has anyone had this problem? Today, the rash is fainter, but it is my day
off Minocin.
Does this mean I'll have to stop the AP? I HOPE NOT! It seems since I have
RA, I get rashes from many medicines.
2) Can the pain and tiredness (and maybe the rash) be a mini-herx? I know
it's not bad compared to how many people feel, but I was feeling great and
now I'm feeling badly (though not as bad as before AP).
3) I also went away this weekend and pretended I didn't have RA since I felt
so good, and I ate what I wanted for the first time in ages (of course, it
was sugar, sugar, sugar) and I haven't been sleeping enough.
Anyway, my main concern is allergy to Minocin. I want to stay on even though
I had/have a rash.
Anyone else ever have a rash? Do I have to tell Doc? Should I reduce to 50
instead of trying this week to do 100M 50W 100F? I can reduce for a week or
two.
Any advice from you all would be gratefully received.
Susan

breaking news

2007-10-21 15:43:56

This article appeared in today's morning paper in Melbourne, Australia.
Melbourne research creates drugs to "turn off" the process that destroys tissue
and bone in arthritis.
By MARY-ANNE TOY
HEALTH EDITOR
Melbourne scientists have made an international breakthrough in the development
of new drugs to fight auto-immune diseases such as rheumatoid arthritis and
lupus.
A team from the Austin Research Institute in Heidelberg and the Biomolecular
Research Institute in Parkville have created a series of drugs to turn off the
inflammatory process that causes tissue and eventual bone destruction in
rheumatoid arthritis and similar diseases.
The drugs are being tested in the laboratory and should be ready for clinical
trials in two to three years.
Professor Mark Hogarth, acting director of the Austin Research Institute, said
the discovery was the culmination of nine years' work. "This approach will
revolutionise the development of new drugs to treat these chronic and
debilitating diseases," he said.
"It is a paradigm shift ... It is also a platform technology that will pave the
way for the development of drugs to treat allergy and asthma."
The Fc receptor is part of a family of receptors and other receptors in this
group are involved in allergy and asthma.
Professor Hogarth and Dr Maree Powell of the Austin and Dr Peter Colman, Dr Tom
Garrett and Ms Kelly Maxwell of the BRI have discovered and patented the
structure of the Fc receptor that plays a crucial role in the inflammatory
process.
The Fc receptor acts as a "lock", preventing the release of inflammatory cells
unless they are needed to fight infection. People with autoimmune diseases,
however, have aberrant antibodies, which open the Fc receptor lock, unleashing
continuous inflammatory destruction of tissue.
"By knowing the shape of this lock we are designing drugs specifically to 'plug
up' the key hole of the lock to prevent it being activated," Professor Hogarth
said.
The head of rheumatology at the Royal Melbourne Hospital, Professor lan Wicks,
said the Austin-BRI discovery was internationally regarded as a breakthrough.
"Auto-immune diseases have been in the too-hard basket in the past," he said.
"This is important because it allows us to make specific drugs to block an
important pathway in the inflammatory process and, by being more specific,
hopefully, they will be more effective and with fewer side-effects. "
Professor Wicks said while existing treatments for rheumatoid arthritis,
including anti-inflammatories and disease-modifying anti-rheumatic drugs such as
methotrexate or gold, were effective for many people, they could have serious
side-effects and did not work for all patients. "There is still a great need
for new and better treatment strategies for these common and often debilitating
diseases," he said.
The research has been published this month in the international science journal
Nature Structural Biology.
Professor Hogarth said "rational drug designing", that is, finding the structure
of a molecule and then designing a drug to fit, had become possible only in the
past five years because of advances in gene technology and robotics.
The approach was far more sophisticated than the traditional "grind and find"
method of testing natural compounds in the hope they might be effective.
Rational drug design was used to develop Biota's anti-flu drug, Relenza.
Other recent advances in arthritis treatment included improved
anti-inflammatories that did not cause ulcers. Last year the US Food and Drug
Administration approved a new class of arthritis drugs, including leflunomide.

Protocol found

2007-10-21 02:07:46

Dear Liz and Chris:
I emailed you guys re: protocol and found it in my mail box.
Sorry! I have had really bad spaciness and memory problems.
Lucky I can remember my name,
Susan

Colostrum

2007-10-20 23:06:44

Hi Gang,
Has anyone heard about or read about what Colostrum can do? I'm not talking
about your regular run of the mill commercially processed colostrums found on
the shelf but about a specially produced capsule product that isn't destroyed
by high heat.
As many of you may be aware colostrum is the first secretion produced by a
lactating mother, human and animal. It is produced for about 24 to 48 hours
before the milk comes in. It helps develop the immune system in the infant.
Some animals will even die if not given the colostrum after birth.
Anyway when I was on the farm as a child we used to make an oven pancake out
of colostrum, like the oven pancake Pannekuuken House makes. If I remember
correctly the colostrum pancake didn't need any eggs. It is very high in
choletersol. I believe in the mfg product the cholesterol is removed. I
have to check further.
I plan on doing more research myself and if convinced I will try it beginning
Thursday.
Anita
RA 26 years, Fibro, AP 16 Months

Question/connective tissue

2007-10-20 17:15:58

Hello All,
Quick question... has anyone ever had the backs of the knees in the soft
tissue area hurt during a herx? Seems my joints are better in the knees
but I am having a what I believe is herxing in the connective tissue of my
right knee and on the backs of both of them. I have never had much
swelling, so the right knee is concerning me. The joint seems to be ok,
but the swelling is making it stiff.It is right about the kneecap on the
right side. Dr. Franco gave my supps to take for the conective tissue so
maybe he anticipated this, I don't know.
I can't complain because everything else is so much better. I am going to
cut from 4 mg of pre to 3 this weekend.
Leslie

Doxi and OA

2007-10-20 12:17:39

HI all,
I have noticed that several finger joints that have been previously
involved with OA years before I started doxi
( the very end joints of the finger nearest the fingernail) have greatly
improved since I have started the doxi. They used to hurt if you touched
them and had large knots on them. The knots are hardly noticable now and
they no longer hurt. I also had some degenerative disk disease in my neck
and it has also quit hurting and isn't stiff ( the orhto thought I would
always have a stiffness problem with it)
It isn't just helping my RA but other forms of arthritis too.
Leslie

Protocol &amp; brain fog

2007-10-20 10:55:56

Please forgive and ignore my e-mail re: protocol.
I just found Chris's posting.
My brain is really going it's frightening!
Thanks.
Susan

IV iron

2007-10-19 20:55:57

Dear Group,
Special thanks to Jenny, Carol, Ethel, and Heather for responding to my
query about IV iron. To add some additional information, my anemia was
first diagnosed last year as iron deficiency anemia caused by blood
loss, but when scopes were done along with x-rays and stool tests, no
source of bleeding was found. The diagnosis was changed to chronic
disease anemia by my family physician and he increased my Minocin and
aspirin. Over the year, I worsened considerably, with hemoglobin ending
up at 7.1, hematocrit at 22, RBC at 3.7, ferritin levels between 2 & 3,
along with many other abnormally low counts. I went to a new
rheumatologist and a hematologist who both said the anemia was
definitely iron deficiency from bleeding. I did not respond at all to
high doses of oral iron, but instead had decreases in my blood counts
again. Thus, the need for IV iron. I had the first treatment
yesterday; I was at the hematology center for almost 8 hours. I only
had minor reactions such as dizziness and bitter taste in my mouth. I
will go in two weeks to have my counts checked again. Hopefully, this
will work for me. I am at the point where ordinary, everyday
functioning is becoming increasingly difficult. Heather, I would be
interested to know how your blood counts responded to the IV iron.
By the way, I have gone completely off of aspirin, which I had been on
for 35 years and which helped me considerably, and am now again on
pulsed doses of Minocin and on Relafen.
Thank you for your imput!
Judy Henry
JRA 35 yrs; Minocin 11 mo.

(no subject)

2007-10-19 13:25:23

HOW TO SURVIVE A HEART ATTACK WHEN ALONE
(Since many people are alone when they suffer a heart
attack, this article seemed in order.)
A person, of any age, can have a heart attack.
Without help the person whose heart stops beating properly
and who begins to feel Faint, has only about 10 seconds left before
losing consciousness. However, these victims can help themselves by coughing
repeatedly and very vigorously. A deep breath should be taken before each
cough, and the cough must be deep and prolonged, as when producing sputum
from deep inside the chest. A breath and a cough must be repeated about
every two seconds without let up until help arrives, or until the heart is
felt to be beating normally again. Deep breaths get oxygen into the lungs
and coughing movements squeeze the heart and keep the blood circulating. The
squeezing pressure on the heart also helps it regain normal rhythm. In this
way, heart attack victims can get to a phone and, between breaths, call for
help. Tell as many other people as possible about this, it could save their
lives!
--from Health Cares, Rochester General Hospital via Chapter 240's
newsletter
AND THE BEAT GOES ON...
(reprint from The Mended Hearts, Inc.
publication, Heart Response)

fibro mailing list

2007-10-19 05:53:39

Any members on our list with fibromyalgia? I have recently subscribed to a
mailing list for fibro from a 15 year old girl with the condition, a
non-discussion list on which the moderator sends out three mails a day only. I
am very impressed with the quality of the information I am receiving from it and
wanted to let you know about it. Her address is DarkAsRose@... if you want
to subscribe and the list is called LifeLink. Her home page can be found at
www.geocities.com/HotSprings/Spa/3576 Check it out if you or a family member has
fibromyalgia! Liz G

Fw: NNF - What is a Phytochemical?

2007-10-19 05:01:48

I thought this nutrition news mailing might be of interest to some of you as
there is so much talk about the new supplements has been on the list the
last few days, but first I want to add my two cents, as a person who has
been using herbal remedies for over a decade. Many people have been trying
to sell these new supplements to me. Some of them put MD after their names
(Marketing Distributor? or Medical Doctor?) , but when I question them
about their medical credentials I get no further coorespondence from them.
Many of them know far less about the substances they are selling than I do,
and I am by no stretch of the imagination an expert. When you get into the
business of extracting and concentrating single components from plant and
animal sources, you start to cross the line from herbal medicine into
pharmceutical products, which are not often, in the realm of supplements,
subjected to the extensive testing that pharmaceuticals are subjected to. As
an example of the dangers of concentration and isolation of compounds,
consider the difference between mountain indians chewing a few coca leaves
for stamina, and the effects of freebase cocaine on a person's body and
psyche. Nature has provded medicinal properties in plants in certain
concentrations and in the presence of protective and assistive compounds.
Many new supplements are emerging which in my humble opinion are really
pharmaceuticals due to the isolation of active ingredients. Many of our
prescription pharmaceuticals are still derived from plant and animal sources
and many of us here are aware of some of the dramatic and dangerous effects
and side effects thay are capable of. So please, folks, use caution in
choosing these specialized supplements and consider whether you want to use
your one and only body as a testing ground for new medicines, herbal as well
as pharmaceutical. Herbs in whole plant form have the collected wisdom and
experience of generations of use to recommend them or caution against them
in certain circumstances, these new compounds do not. Just one woman's
opinion. :) Love 'ya all! Liz G

Laboratory Diagnosis of Mycoplasma Infection

2007-10-19 03:11:28

http://www.mdlab.com/serv02.htm
--
Clark Signs:
http://members.xoom.com/sclark/
AP Support Group:
http://www.geocities.com/SoHo/Gallery/6412/
Lots of arthritis and health links:
http://www.geocities.com/SoHo/Gallery/6412/supportlinks.htm

new OA theories

2007-10-18 21:15:56

Got these quotes from Dr Docs page.
"Whilst in the past it was believed that the process was predominately a
degenerative one - there is increased belief that the immune system is playing
an active role in progression of the disease through Tcell and immune complex
mechanisms. This has opened the therapeutic options to include disease modifying
drugs rather than symptomatic therapies alone."
"There is a new movement toward the use of these by rheumatologists, as there is
a recognition that the disease is not as simple as the old degenerative concept.
These therapies now include the use of Salazopyrine / Asulphidine and
Antimalarials - Nivaquine /
Plaquanil. Trials on these are in progress."
--
Clark Signs:
http://members.xoom.com/sclark/
AP Support Group:
http://www.geocities.com/SoHo/Gallery/6412/
Lots of arthritis and health links:
http://www.geocities.com/SoHo/Gallery/6412/supportlinks.htm

I Need Some Help

2007-10-18 08:53:04

I just got back to Denver from my 3rd visit with Dr.
Franco. I've been on Prednisone since the onset of RA in
March 1998. I was really shocked when Dr. Franco said he
wanted me to go onto MTX and drop the Prednisone. I know
all the side effects that go along with Pred. but I also
know all the side effects that go along with Mtx. I've been
in a state of tears since my 10:30 a.m. appointment and it's
now 9:30 p.m. - at Dr. Franco's office, on the plane, even
now! Please, somebody tell me that it's all going to be
alright. I'm so scared! I guess I though that Dr. Franco
would recommend cutting back on some of the hard drugs.
This has set me back emotionally like I never thought
possible! I hear all the bad things about both of these
drugs and in my mind I've always thought Mtx was the nursing
home of drugs...when there's no hope you go to Mtx! I just
can't believe that now instead of worrying myself sick about
Pred now I have to worry myself sick about Mtx! He wants me
on this for 2 years while we're waiting for the AP to take
effect. That seems like an awful long time. How will I
ever get off of this stuff and what will my health be like
if/when I do? I just don't want to face this! I feel so
hopeless and helpless! I was the kid that always ate right,
always ate home cooked good food, limited the junk food, was
athletic - a professional figure skater. For what...to end
up on toxic drugs! What a waste! Can anyone offer me any
hope?

Dr. Chiu Please answer :-/

2007-10-18 07:43:30

Hello well I am back from my ultrasound and blood tests from the lump on my
right side over my liver. I have a question for you Dr. Chiu. While looking
at my Ultra sound they were training a new woman so I got to learn a bit abut
what the were looking at. One of the first things we saw was my Aorta, and
Calcium plaques that looked like doors half closed.
I know most people with AS Die from heart attacks. I am getting a clue why.
Is this calcification of my Aorta cause for concern and how can I fix it? Is
it fixable? How can I insure I do not do the wrong thing and the door closes
the whole way and the blood cannot get through the Aorta? I would rally
appreciate your help in answering this question and any advise you can send
my way.
Kelly Pritchard

Check out Immune system - An internal force armed and ready for battle

2007-10-17 20:31:29

<A HREF="http://www.mayohealth.org/mayo/9502/htm/immunesy.htm"
Immune system - An internal force armed and ready for battle
</A
The link is from the Mayo Clinic. It is the easiest to understand article I
have ever read about the immune system and how it works. Good reading for us
non-professionals.
Anita

ginger

2007-10-17 14:41:48

Hello,
Would someone send me the directions to make the ginger drink,
please. I finally have some fresh ginger. How is it cold? I don't
care for hot drinks.
Thanks
Denise
NC

Diflucan vs. Nystatin

2007-10-17 09:06:38

Grp:
I finally am getting my 5 day Clind. starting next Monday.
I know that besides acid.- the Candida Plus supplement is good for yeast. My
stomach is not doing well with it- so I need to choose between Nystain (6
tabs @ day) or Diflucan 1 every 3 days. I have both products here.
Please give some some advice. I would only like to take these drugs during
the 5 day IV therapy- then go back to my daily acid.- start them up again in
5 weeks when the IV'S are due again.
Thanks,
Carol*

Plant Sterols &amp; Sterolins

2007-10-17 03:07:07

I've found lots of interesting ads for plant sterols & sterolins....a
natural immuno-"modulator".
Naturally, this sounds a lot like steroids....anyone have any experience on
this?
-Mike-

Free Report on Imunall]

2007-10-16 21:45:53

Return-path: <medisure@...
Received: from smtp01.infoave.net ("port 1989"@[165.166.0.26])
by InfoAve.Net (PMDF V5.1-12 #23426)
with ESMTP id <01JBL1U1RLV0AJXFB6@...
24 May 1999 17:58:20 EDT
Received: from ORION.galaxymall.com ("port 4848"@[209.210.220.3])
by SMTP00.InfoAve.Net (PMDF V5.1-12 #23426)
with ESMTP id <01JBL1TGV2QI8WXJSY@...
Mon, 24 May 1999 17:57:42 -0400 (EDT)
Received: (from nobody@localhost) by ORION.galaxymall.com (8.8.8/8.8.8)
id PAA00401; Mon, 24 May 1999 15:55:50 -0600 (MDT)
Date: Mon, 24 May 1999 15:55:50 -0600 (MDT)
From: medisure@...
Subject: Free Report on Imunall
To: J P Hiatt <hiattruc@...
Reply-to: medisure@...
Message-id: <199905242155.PAA00401@...
FREE REPORT
AT LAST, A REAL BREAKTHROUGH FOR SUFFERERS OF ARTHRITIS...
Advanced Medical Systems and Design Ltd., a Canadian company, is very excited
about the results of their clinical and field tests on IMUNALL, a naturally
derived immune system modulator that actually halts the arthritis process.
Toward an understanding of arthritis
Arthritis literally means "fire in the joints." It is an inflammation of the
joints, surrounding tendons, ligaments and cartilage. Among the oldest known
afflictions of human beings, it can effect virtually every joint of the body.
While there are many different kinds of arthritis the three most common are
rheumatoid arthritis, osteoarthritis, and gout, a painful inflammation caused
by an excess of uric acid in the blood.
Medical research has previously recognized only rheumatoid arthritis as being
an autoimmune disease, that is, the body comes under attack by its own immune
system. An article about arthritis in TIME magazine (October 28, 1996)
states, "the problem starts when, for reasons no one fully understands a few
misguided T-cells incite other immune system cells, called macrophages, to
attack the joints."
Medisure, the manufacturers and distributors Medisure Cerasomal-
cis-9-cetylmyristoleate or IMUNALL, through their work with the product at
their immunological disease centers theorized that in both rheumatoid
arthritis and osteoarthritis, which occur as a result of the daily wear and
tear on the body's joints, macrophage immune cells encounter particles of
damaged cartilage and consequently prompt memory T-cells to generate programs
to destroy more cartilage. Unfortunately, the program doesn't distinguish
between healthy and unhealthy cartilage, so the destruction of healthy
cartilage occurs as well.
The development of IMMUNAL
Cetylmyristoleate was discovered and isolated by a leading research scientist
at the National Institute of Health for Arthritis, Metabolism and Digestive
Diseases, in his quest for a cure for arthritis. After unsuccessful attempts
to induce arthritis in certain mice, he realized that these mice had some
protection from arthritis. He found the factor, cetylmyristoleate, in 1974.
This factor, however, is only effective when injected and is virtually
ineffective orally.
Similar product confusion
Several oral forms of cetylmyristoleate are on the market, but, as mentioned,
they are ineffective as a cure when administered orally. They may provide
some minimal relief but never a lasting relief or cure.
Medisure in the later 1990's, was successful in developing Cerasomal-
cis-9-cetylmyristoleate in capsule form. This product is not
cetylmyristoleate, but an analog of the latter, produced by a complex
proprietary process, and is assimilated efficiently by the body, in order to
gain access to the blood and lymph system.
Advanced Medical Systems and Design, Ltd. performed clinical and field tests
of the product throughout Canada over two years and made suggestions to
Medisure for further improvement of the product. The resulting product,
IMUNALL, is a highly effective immune system modulator, which does not treat
the symptoms of arthritis but corrects the cause. It is the only orally
administered immune system modulator in the world. It is the only product of
its kind derived from the fatty tissue of beef. Each capsule contains
Cerasomal-cis-9-cetylmyristoleate, chelated magnesium which stimulates bone
resorption and thus provides sufficient calcium to the body, silicon dioxide
and chelated manganese which assists in providing moisture content to
connective tissue.
Clinical and field testing results
Clinical and field testing by Advanced Medical Systems and Design Ltd. was
conducted using different age groups, both male and female, of varying
ethnicities and with varying degrees of arthritis. Age, gender, and
ethonological background appeared to be irrelevant to patient response.
Study results showed improvement in all cases but twelve. The twelve
nonresponding subjects proved to have serious previous damage to the liver
from steroid or alcohol abuse, indicating that impaired liver function may
preclude total success with IMUNALL.
Since Advanced Medical Systems and Design, Ltd.'s extensive testing, several
thousand patients have seen major improvements of 80-90% in pain and joint
mobility. IMUNALL has proven effective in over 80% of cases.
How IMUNALL works
IMMUNAL corrects the root cause of arthritis by rectifying and normalizing
the
faulty programming of the immune system, which causes the attacks on the
joints and cartilage by other immune system cells called macrophages. If the
macrophages continue to attack the body's own cartilage, as mentioned earlier,
they develop a chemical message that is passed onto the memory T-cells. If
this message is repeated frequently, the memory T-cells instruct more and more
macrophages to dispose of more and more healthy and unhealthy cartilage. Once
this destruction is halted, the body can begin its repair process without
interference., and the joints
begin to normalize.
With the pain and inflammation relieved, the joints can function again quite
normally. The pressure in the joints caused by inflammation is the major
cause of arthritis pain. IMUNALL reduces the inflammation and the arthritis
pain disappears in almost every instance. In a few extreme cases during
clinical testing pain was reduced by only 70 - 80%, which was still of such
major benefit that it allowed the persons to function normally again.
The great news is that once the bad progamming is corrected, which usually
takes a little over two weeks of treatment, no further medication is
necessary, not even IMUNALL. Faulty programming of the immune system is not
at all uncommon. In fact, virtually all chronic ailments resulting in tissue
inflammation involve memory T-cell programming and often indicates an auto-
immune disease. These ailments include prostate enlargement, asthma,
emphysema,. Fibromyalgia, lupus, tendinitis, carpal tunnel syndrome, colitis,
Crohn's disease, psoriasis and many others. Theoretically, IMMUNAL could
prove beneficial for many of the ailments. However, arthritis is the only
ailment for which Advanced Medical Systems, and Design Ltd. has obtained
sufficient testing data.
Getting the most from IMUNALL
In clinical studies carried out by Advanced Medical Systems and Design Ltd.
everyone involved in the taking of IMUNALL benefited from its use except, as
previously mentioned, persons who had suffered liver function impairment which
usually results from disease or alcohol or steroid abuse. In practical use,
however, some persons with digestive problems or disorders that could
interfere with the assimilation of the product have also failed to respond
fully.
Usual medications can be continued while taking IMUNALL, but after a few
days
probably won't be needed. Steroids and medications such as
Methotrexate/Rheumatrex which are detrimental to liver or digestive function
should be avoided. In diabetics, the normalizing properties of IMUNALL may
reduce the need for insulin, so careful monitoring is necessary while taking
IMUNALL. Always consult your doctor before altering the dosage of any
prescription medication or adding any new protocol.
There is no need to go on a special diet, but certain foods should be
avoided
completely during the treatment and for two weeks after the final capsules
have been taken. Afterwards, there are no restrictions. Foods to be avoided
are alcohol, chocolate, coffee, black tea, cola drinks and other caffeinated
sodas, and wheat and corn products like muffins, tortillas, etc.
Exercise is not essential, but usually with the absence of pain and the
return
of joint mobility, most people want to become more physically active and to
reduce weight or rebuild strength. Just be sure to build up an exercise
program gently.
Other supplements help to maximize the intestinal absorption and the
internal
utilization of IMUNALL.Bioflavanoids with rutin should be taken along with the
capsules. Digestive enzyme products that contain lipase, amylase and protease
are recommended. Avoid products that contain hydrochloric acid. Protein
powders made from egg-white are best for milk-intolerant individuals.
To help rebuild cartilage, take glucosamines and chondroitins. These
substances do not reverse the arthritic process but they do provide an
abundance of the basic molecules that are necessary for your body to
manufacture new cartilage. It is best to take them before, during and after
your IMUNALL program. We recommend a capsule which combines chondroitin
sulfate and glucosamine sulfate in a single capsule of 900 mg. - one capsule
to be taken in the morning and one in the evening with meals. These capsules
should be taken everyday on an ongoing basis and continued after the IMUNALL
regimen has been completed. Finally, drink at least eight glasses of water
spaced throughout the day.
Effective dosage levels
IMUNALL capsules should be taken on an empty stomach with water only. Do
not
eat for one hour before or one hour after taking the capsules. The dietary
precautions mentioned should be observed. Three capsules are to be taken each
morning and evening for 10 days. Even though full relief may occur early in
treatment, it is necessary to take all the capsules to assure the complete,
long-lasting benefits of IMUNALL.
Special notes
Some persons who have been ill for many years sometimes feel the effects of
a
"detoxification reaction" which may occur when the body is not able to
eliminate large amounts of newly cleansed toxins fast enough. If feelings of
weakness or nausea appear, the capsules should not be taken until those
symptoms are gone. The beneficial effects of IMUNALL are cumulative; any
temporary interruptions will not affect the final outcome of the therapy.
Rarely, a few people with rheumatoid arthritis have felt a temporary
worsening
of their symptoms for a few days, after which progress continues normally.
However, the regimen should be strictly adhered to for the 10 day period.
Addendum
With recent evaluation of all the studies done and analyzing the data, I
have
concluded that the dosage regimen could be altered for maximum effectiveness
of the largest segment of subjects.
The study showed that approximately 95% of the subjects who had a favorable
response did so within the first 10 - day period. The other approximately 5%
showed favorable results after a regimen of 16 days and therefore would derive
the greatest benefit from a full 20- day regimen of two bottles (120).
It is the opinion of Dr. Ricky Allen, Managing Director of Advanced Medical
Systems and Design, Ltd.that the new dosage/regimen recommendation be a 60
capsule, 10 - day program. This new regimen would give maximum benefit for
the greatest percentage of subjects at approximately one-half the cost.
For ordering information please e-mail Medisure at medisure@... or call
Medisure at their toll free number 1-888-743-2533. A full 10 treatment is
$199.95 including tax and shipping.

Anyone have any experience with ImmunAll

2007-10-16 19:44:56

Is this ine of those "Too good to be true" items? comments?
http://www.medisure.com/what.htm
Joyce

CNN - Report: Feds look into pricing and reimbursements for cancer drug - May 24, 1999

2007-10-16 07:54:59

http://www.cnn.com/HEALTH/cancer/9905/24/costly.drug.ap/
--
Clark Signs:
http://members.xoom.com/sclark/
AP Support Group:
http://www.geocities.com/SoHo/Gallery/6412/
Lots of arthritis and health links:
http://www.geocities.com/SoHo/Gallery/6412/supportlinks.htm

Different Antibiotic Protocols

2007-10-16 01:59:36

In the process of researching the antibiotic protocol (I'm now reading,
"The Arthritis Breakthrough" by Scammell), I came across The Arthritis Trust
web site on the internet. It's an organization based in Tennessee and
appears to promote a different antibiotic protocol for rheumatoid disorders.
Can anyone tell me what the differences are and if this is something worth
pursuing? Is it legitimate? Are there any standards in antibiotic
treatment?
I'm also trying to understand the tradeoffs of starting "standard" medical
treatment through my rheumatologist versus the antibiotic protocol promoted
by Dr. Brown. Can you do both? I keep reading that most rheumatologists
now recommend aggressive treatment early on in the disease (beore the fist
year or two) to halt or slow down joint distruction and that there are a
number of drugs (some more toxic that others) that can do this. If you can
only do one or the other, how does one make an intelligent/informed
decision? My gut tells me to start the antibiotic protocol first and give
it 6 months or so to see what effect it has. If I don't see any
improvement, then consider more traditional treatment. Does this sound
rational?
I have had RA symptoms for approx. 2 months and so far my blood work is
negative. Unfortunately, my symptoms have gotten worse. I am scheduled to
visit my rheumatologist again in about one month, at which point she may
suggest "serious" drugs.
Thanks for any advise/help you can provide.
Kevin
kburr@...

Ankylosing Spondylitis

2007-10-15 23:34:00

Hojjat Ollahi@CBTSYSTEMS
05/24/99 12:40 PM
Hello,
It's been a long while since I have posted. I have been reading quietly in
the background, though.
Once again, my many thanks to Chris, Ethel, and all the others who
contribute to keeping this wonderful
group going.
I have a friend (about 40) who has suffered from Ankylosing Spondylitis
since childhood. I suggested using the AP
to him since this is categorized as a rheumatic disease - it is also listed
as one of the conditions for which the
AP should work on the rheumatic.org website. He and I would like to know
whether anyone in the group knows of
a person who has used the AP to treat Ankylosing Spondylitis. If so, we
would like to take advantage of that person's
experience with this.
Thanks,
Hojjat

Help, please. Maria

2007-10-15 13:22:35

Hi all. I need help deciphering what's going on here, and maybe you guys
have some clues? I'm on Prednisone, and cutting back slowly. The past three
times I've cut back (From 35-30, 30-25, and now 25-20) I've had no reaction
at all for the first two weeks (Minocin's working??) But then the third week
hits, and I'm tired and sore and in poor shape, and now I'm in the fourth
week and I'm getting pretty weak. I have Dermatomyositis, which is basically
a muscle decay, but I'm wondering why I feel so fine the first two weeks and
it only affects me the third and fourth? The last two times I recovered on
the fourth or fifth week, and felt fine, so that's why I cut back again.
However, this time I'm feeling weaker than ever before. Any ideas? Thanks
you guys, you're about the only true place to get answers.
Maria

Can you help this person?

2007-10-15 06:21:13

Hi Group,
Received the following letter and thought that some of you might like to
follow it up:
..........
X-From_: bobbiehunter@... Sun May 23 17:10:46 1999
X-Envelope-To: <judy@...
From: "Bobbie Hunter" <bobbiehunter@...
To: <judy@...
Date: Sun, 23 May 1999 21:23:05 +1200
X-MSMail-Priority: Normal
X-Mailer: Microsoft Outlook Express 4.72.3110.1
X-MimeOLE: Produced By Microsoft MimeOLE V4.72.3110.3
My husband had what seemed to be the most recent flu over Easter and that
involved a stomach bug. This was a very achy week with temperatures and the
following week he had the most incredibly bad back and was finally admitted
to hospital. The first 2 weeks they went through looking through an
orthopaedic then infectious disease possibility before settling on reactive
arthritis. He tested positive to HLA B27. As he is allergic to anti-
inflammatories, he had high levels of hydro- cortisone through an I.V. and
then was put on oral prednisone. He has inflammation in both knees, ankles,
right hip and elbow and lower back and is in constant screaming pain dulled
somewhat by morphine slow release 100mg twice a day. His long term drug he
started 4 weeks ago is sulfasalazine as yet with no effect but the
prednisone has kicked off diabetes and he is also now on insulin. He has
now been in hospital for 4 weeks and starting into his 5th week.
Can you describe other possible treatments, or your experience or anything
else.
Thanks so much Bobbie Hunter
............
Thanks,
Love and hugs to all,
Jude.

MRI and detection of progression of RA

2007-10-15 05:57:51

Interesting article using MRI's to detect synovitis and potential for
erosion of bones. A new test for us all to get!
http://pharminfo.com/pubs/ranews/ranews1_107.html
Mark
http://members.tripod.com/~Mark_Holmes
RA 4/98 AP 7/98
Minocycline (Lederle generic) 100mg 2x/day; Lodine 400mg 3x/day
boswellia,circumin,ginger,evening primrose oil; Zone Diet
RA Chat - http://members.tripod.com/~Mark_Holmes/RA/ra.html

Skin Problem Question??

2007-10-14 21:15:21

Hi Folks,
For 2-3 months now I have been dealing with a problem on my
hands that I'll try to describe. On my finger pads and the
sides of my fingers they have become scaley, sort of like
lizard skin or something, but at the same time they're also
raw and flakey. There are areas of long striations running
the length of two distal joints where all this is taking
place. There are also places that get little speckles of
red, which are tiny little scabs. I know they'e raw because
when anything like a household cleaner or nail polish
remover or peroxide or whatever touches them they hurt and
burn like *&#@%! I have used every high power lotion I know
on them. They aren't red. It's not like the sweaty red palms
that the skin peels on. It's also not on the backs of my
hands at all. I honestly don't have a clue what it is other
than that they hurt.
Does this have anything to do with psoriasis? It's seems
pretty benign compared to the photos I've seen to be that.
Is it some kind of rxn to the minocin? All suggestions will
be most welcome!
Thanks - Jan K

olive leaf + juicing

2007-10-14 12:13:19

I recently started taking olive leaf extract 15% oleuropein 500mg, I
take 3 tablets am and pm for 3000mg a day. Is that too large a dose? I
have been feeling tired and achey lately, unfortunitely I haven't been
good at my day book and don't know when I started the olive leaf or how
soon afterward I got to feeling worse. I also have gotten big into
juicing and since dandelions are out I've been making a juice of two big
handfuls of dandelion and a beet plus garlic, I have one of those aday.
Most days I drink 35 oz of veg juice plus take suppliments. Someone
posted about her Dr saying that all this stuff has to go thru your liver
and can make it work harder, so my question is can you overdo doing good
things for your liver? Thanks for any advice.
Julie

MSM

2007-10-14 09:57:50

Have been taking the MSM for over 3 weeks now and it hasn't worked for me at
all.
Anita,
RA 26 years, Fibro, AP 16b months

Peroxide Epsom Salts Bath

2007-10-14 08:24:09

I've got the stuff. Will the hot water kill the peroxide? Should I get my
pores opened and then slather it on out of the tub? We have a hot tub and
sauna at the Club House but there is no way in the world I could do this
there. Wish I could. Maybe I could sneak into the hot tub at night when no
one is around and then apply it to my legs, arms and chest with a wash cloth.
How long would I leave the application on?
Thanks, Anita
RA 26 years, Fibro, AP 16 months

Rheumatic.org

2007-10-13 22:14:34

Dear Group,
As you probably know, the web page is still down, and it looks like we
will have to wait until Chris returns to find out why.
In the meantime, Steve is checking other options including those some of
you have sent us.
We will keep you posted.
Ethel

Pain Patch

2007-10-13 12:37:50

Hi,
About one month ago I was reaching up into a cupboard. Suddenly, I got a
terrible sharp pain in my right shoulder, and it seemed to "catch" along with
making a loud sound inside my shoulder. It turned out that I tore my Rotary
Cuff. I then had three weeks of therapy. It
then seemed to be a little better. It was still painful but I managed to use
my left arm for reaching up and other things.
About a week ago I tripped on my shoelace and
quickly braced myself with my left hand against
a wall to keep from falling down. Immediately
a sharp pain shot through my left shoulder. The pain was worse than that of
the right shoulder.
I had another x-ray of my left shoulder which showed nothing.
The doctor prescribed for me some (Darvocette)
(? Spelling). As the pain continued on both shoulders, I became rather
desperate. My
husband bought some patches called Pain Patch,
made by Mentholatum, at Longs drug store. So far they are the only thing
that has helped with my pain. It is not greasy, doesn't smell, and can be cut
to size for whatever you are treating.
It is good for: arthritis pain, sore muscles, painful joints, and backaches.
For me they have
been wonderful. Maybe they can help you.
Jeannie

RA spes for sale

2007-10-13 12:11:33

I no longer take it. I started on enbrel and am doing ok and dont find myself
needing it anymore Im not sure what I paid for it but I have 3 bottles that I
will sell at 10% below todays cost e-mail tvman@...

Tijuana pharmacy

2007-10-13 03:48:05

hi group -
i'm going to tijuana next month to buy some Rx drugs and I need some
pharmacia recommendations
i'm looking for a large pharmacia with lots of traffic. i stay away from
places with the "best prices" run by two brothers who need a shave
i need lipitor (atorvastatin) by Park. i get the rest of my drugs from asia
thanx,
bill
RA 9 yrs, AP 14 mos

Dr. Chiu

2007-10-13 01:56:24

Dr. Chiu/Grp:
My hemoglobin has been 11.0 for the last few months - normal range begins at
12. I feel very fatigued but know that this goes along with RA. Should I be
concerned that over the last year the numbers are definitely creeping
downward?
My RA doc said there is nothing you can because is directly associated with
RA and is very common.
Also, do you have any patients on Enbrel? If so, how are they doing?
Thanks,
Carol*

zinaxin

2007-10-12 16:54:50

So how do we obtain zinaxin? Any number will be appreciated. thanks---
Brenda

Fw: Zinaxin

2007-10-12 05:48:41

Forwarding this information I found on Zinaxin from a newsgroup posting as
there has been some interest in it here:
<snip

New Probiotic

2007-10-12 02:10:08

From Time Magazine, May 23rd
Health Germs
Online advice from TIME health columnist Christine Gorman
Say the word bacteria, and most folks conjure up images of a nasty germ like
staphylococcus or salmonella that can make you really sick. But most
bacteria aren't bad for you. In fact, consuming extra amounts of some
bacteria can actually promote good health. These beneficial bacteria are
available without a prescription in drug and health-food stores and in foods
like yogurt. So far, the best results have been seen in the treatment of
diarrhea, particularly in children. But researchers are also looking into
the possibility that beneficial bacteria may thwart vaginal infections in
women, prevent some food allergies in children and lessen symptoms of
Crohn's disease, a relatively rare but painful gastrointestinal disorder.
So where have these good germs been lurking all your life? In your
intestines, especially the lower section called the colon, which harbors at
least 400 species of bacteria. Which ones you have depends largely on your
environment and diet. An abundance of good bacteria in the colon generally
crowds out stray bad bacteria in your food. But if the bad outnumber the
good--for example, after antibiotic treatment for a sinus or an ear
infection, which kills normal intestinal germs as well--the result can be
diarrhea.
For generations, people have restored the balance by eating yogurt,
buttermilk or other products made from fermented milk. But nowadays, you can
also down a few pills that contain freeze-dried germs. These preparations
are called probiotics to distinguish them from antibiotics. Unfortunately,
you can't always be sure that the bacteria in the products you buy are the
same strains as those listed on the label or even that they're still alive.
Probiotics are usually sensitive to both heat and moisture. Among the most
promising and most thoroughly researched probiotics is the GG strain of
Lactobacillus, discovered by Dr. Sherwood Gorbach and biochemist Barry
Goldin, both at Tufts University School of Medicine. L-GG, as it's called,
has been used to treat traveler's diarrhea and intestinal upsets caused by
antibiotics. Even more intriguing, L-GG also seems to work against some
viruses, including rotavirus, one of the most common causes of diarrhea in
children in the U.S. and around the world. Here the effect is indirect.
Somehow L-GG jump-starts the immune system into recognizing the threat posed
by the virus. In October a subsidiary of Con Agra started marketing L-GG
under the brand name Culturelle. (For more information, call 888-828-4242.)
Pediatricians at Johns Hopkins are studying a different bug, the Bb-12
strain of Bifidobacterium, which was discovered by researchers at CHR Hansen
Biosystems. Like L-GG, Bb-12 stimulates the immune system. For reasons that
are not clear, infants who are breast-fed have large amounts of
bifidobacteria in their intestines. They also have fewer intestinal upsets.
Dr. Jose Saavedra and colleagues at Hopkins have shown that Bb-12 prevents
several types of diarrhea, including that caused by rotavirus, in
hospitalized infants as young as four months. It has also been used to cure
diarrhea in children of all ages. Products containing Bb-12 are available
from Nutraceutical Corp. (800-365-5966), Solgar (800-645-2246) and American
Lifeline (800-257-5433), among others.

Dr. Chiu - Blood questions

2007-10-12 00:38:32

Dr. Chiu,
I was hoping maybe you could make sense of a puzzle in my
bloodwork many years ago that I've never had a satisfactory
answer to. At the onset of my problems 7 years ago, I had
some abnormal bloodwork that was eventually decided by
doctors to be a manifestation of my chronic pain rather than
an indication of anything wrong. I had a high white cell
count and it was very specific to neutraphils and
lymphocytes. The results were as follows:
7/24/92
8/4/92 2/9/93
WBC 15.5*
13.9* 11.5*
HgB 14.7
14.0 14.0
HCT 44.2
41.3 41.4
MCV 96.6
96.4 93
MCH 32.1*
32.8* 31.3*
NEUT 10.4*
8.8* not checked
LYMPHS 3.8*
3.7* 3.8*
MONO 1.1
1.1 1.2
EOS 0.1
0.2 0.2
BASO 0.1
0.1 0.1
WBC Morph Normal
Abnormal Not Checked
1+ Toxic Gran
I haven't had much bloodwork of any kind since that time so
I have no idea what they are today. But if you have any clue
what this meant then, I'd sure appreciate it. The first test
is 4 months post-MVA immediately followed by an unusually
bad case of respiratory flu. Even so, the WBC is still high
11 months later. If you could enlighten me on what the
specific types of white blood cells are indicative of I'd
appreciate that too.
Thanks - Jan K

for Dr. Mercola

2007-10-11 15:18:29

Dr. Barry Sears, in his book, THE ANTI-AGING ZONE, talks about natural and
synthetic estrogen and progesterone. On P. 213, he says, "At low doses of
estrogen, insulin resistance is reduced. Unfortunately, at higher estrogen
levels, insulin resistance is increased....Progesterone also increases
insulin resistance. Insulin resistance increases circulating levels of
insulin that result in an increased rate of aging and the increased
likelihood of chronic diseases specific to women after menopause."
It was not clear whether he was speaking about all progesterone (natural and
synthetic) or just synthetic. What are your opinions about the use of
natural progesterone and increased insulin resistance?
Linda

Has anyone used Hypericin?

2007-10-11 14:39:05

I received a blurb in the mail about a product by the name
of Serotril. The major ingredient in it that the medical
studies are quoted for is hypericin. It is supposed to be a
natural MAO inhibiter that greatly increases the stores of
serotonin in the brain. It also include inositol
hexanicotinate, which is supposed to break down fat into
soluble lipids to produce energy.
Among the literature cited is a double-blind placebo
controlled study showing that hypericin is more effective
than imiprimine as an anti-depressant.
Anyhoo, I would like to order some, but thought I should
check here first in case some one knew there to be some
danger in these two molecules. Again, they are hypericin and
inositol hexanicotinate.
Thanks - Jan K

PRILOSEC RA

2007-10-11 07:25:57

H Martha, you dont know me, but I get all or everyone mail. I take PriLOSEC
f four years, I have RHEUMATOID ARTHRITIS, RAYANUADS< END OF FINGERS< DEAD
CIR< SCLERODERMA. my fingers are getting worst , but four years ago wow,
Iam better, I got off DIARY PRODUCTS< I cheat a little, but my rum, DR, and
reg primiary DR, both knew what I had the min I walk throu that door
screaming, pain was so bad, then I went for the worst, but thet put me on
PRILOSEC< 20 M cr.CUPRIMINE 250 MG PROCADARDIA xL60MG cr. well I am off the
couch , bed, walker cane yes cir, trigger it, and depression, I do believe
it, PLUS I got into SULLPLEMENT
and I came a long way, but I do have to be check every three months for blood
work and high blood pressure never no trouble, I do feel good, except Any one
knowe what to do for fingers, but martha Prilosec is good for a lot of deases
I didnt think so at firs, because it hurt so so much, but I can tell you this
every ONE BODY IS DIFFERENT< YOU MIGHT GET BETTER OR IT MIGHT NOT< ALL I CAN
SY IS IT IS WORKING FOR ME<<<<<< GUESS WHAT<< MY FRIEND ALWAYS SAY<< YOU WILL
NEVER KNOW TIL WE ALL TRY IT RIGHT< IT CANT HURT< BESIDES WHAT HAVE WE
ALL GOT TO LOSE WE ARE ALL SICK SOME WHERE
yo YO, on the go all the time, never tired any more sometimes, but get on
ALERT LIFE GUARID SUL
feel like me again, wish you luck Martha , write plus keep praying thats the
best med out their, marie from Maine

Fwd: Polymyositis Antibiotics

2007-10-11 02:22:26

Hello everyone,
I thought I would forward the following letter that I received yesterday in
case any of you would like to respond to this person. You can send her email
at ensor@...
Thanks,
Kim in Orlando
DM 91, CREST 95, Lupus 97 AP Aug 97

prilosec question

2007-10-10 19:02:37

I went to an ENT physician several weeks ago now and he checked me out for
problems with hoarseness, etc. and sinus problems. Well, I of course, discussed
with him the RA and he
related to me that my swollen/painful at times parotid gland (where you get
mumps) was probably due to RA. I am going to try and get an ultrasound of the
area because it could be a stone (salivary) as well he said. But probably RA.
AND also he said that PRILOSEC would probably help me because of the RA
(esophagus problems, reflux, etc.) was usually a problem for RA often. Do you
know of this. He gave me some samples of prilosec and said try it. He said to
check with my rheumy. I have not made it back to her; will in June. Any word on
any of these things. Thanks Martha
P.S. Being on 10 mg of predisone just really keeps my immunity so low. I picked
up a stomach virus last week; now I have a scratchy throat. Oh, did have some
good news. I had a bone density test and found out that I do not have
osteoporosis, however, beware they said of predisone (only been on predisone
since 12-98. Have not been able to find anything else (Rheumy suppose to start
me on
minocycline in June -if I am well from asthma she states.

New Rheumy

2007-10-10 12:17:17

Just found out there are 3 more Rheumy's in my HMO. I have an appt. with a
new one next week. I am brushing up on my AP knowledge skills so that I may
better present my case to him. If he chooses to not work with me I will go
to the next one and so on.
Talked with my Internist's nurse and she reaffirmed that he will not treat
RA. Says it's out of his field. Well, I will have to bring it up again when
I go in for something else. The last time I was in and asked him he did tell
me that he didn't want to and that he had not had time to read the Protocol.
But it is interesting in that he gave me a URL (which was incorrect) for a
remedy that *helped* one of his patients. Must have been a MLM. Now he would
be willing to do that but not read the AP and try to help me. Imagine, it
helped *ONE* person. He is a very nice man. But nice doesn't cut it anymore,
I'm too old. He could be nice and help me too, don't you think? LOL
I need to get on the Clinda, or Doxy T and Th.
Cya, Anita
RA 26 years, Fibro, AP 16 months

herx-flare question--DR.'s and everyone

2007-10-10 03:07:31

I have been thinking about the differences between a herx and a flare, and was
wondering if anyone knows whether studies have ever been done about whether
there are any differences in white cell activity during disease-related flares
versus herx-flares? I guess what I'm looking for is a hint whether the herxs are
just inflammatory events due to toxin release or are increased attacks on the
tissues ocurring as well. Thanks for any info you can give. Liz G

XOOM.com Privacy Policy Statement

2007-10-09 18:08:11

Chris you might want to check out this page. xoom has unlimited space for free
and I couldnt find anything in the terms of service about hit limitation.
Sarah
http://www.xoom.com/TOS/
--
Clark Signs:
http://members.xoom.com/sclark/
AP Support Group:
http://www.geocities.com/SoHo/Gallery/6412/
Lots of arthritis