eyes

2006-09-30 13:35:19

I recently went to the ophthalmologist because of a pain in my left eye.
It's not constant, but it does seem to happen when I move my eyes
quickly or when I look out of the corner of my eyes. When I told him I
had RA he insisted that the pain was due to dryness and he suggested a
product called TheraTears. According to him I should use this 4 times a
day continuously. He suggested I should get used to using it as people
with RA tend to have dryness, irritation, and inflammation of the eyes.
I haven't read too much about this and am wondering if any of you have
experienced this problem.
I must confess that the doctor was not very helpful. When I asked him
what other things could happening with my eyes he said, "not everyone
with this disease experiences all the maladies." I said, "well, I'm
just wondering what I should look for, just in case." And he said, "if
it happens to you, you'll know it." so, that's as much information as I
came away with.
Helpful? I think not.......
Any input would be greatly appreciated...
Cathy D.
RA

Here is my story...

2006-09-30 12:51:45

Thank you everybody for welcoming me so nicely. I am very happy that I
found this very special place on the Internet. Here are new friends and
fellow-sufferers to share things with. It is my first experience with
Internet and e-mail, so until now I have been busy reading everything in
my mail each day. Hopefully I get better at sorting things and then get
around to participating in the discussions as well. But first of all,
here is my story
When I was 18 years old I was very active in gymnastics and horseriding.
Training everyday and often shows on weekends, and when I wasn't
training then I was riding my horse. I was almost living on Cornflakes
and milk - not very healthy at all with all that activity. On a tour to
Italy, my feet started to hurt and swell up and they had done several
times before. But I didn't think anything of it until the day I couldn't
walk. I was taken to the doctor and he sent me to the hospital.
Blodtests were done and I was told I had RA. My world collapsed. My
Grandmother had a very severe RA, and had a lot of deformities.
I was treated very aggressively. Gold injections once a week, then every
second week, every month and so on. This went on for 5-6 years. I think
now that this was much to long a time. In the end I didn't feel well.
The disease had travelled quite a bit around in that time, but was kept
so that I could live a "normal" life, take an education etc. I was then
put on Salazopyrin, which meant an improvement in the beginning. I was
on this for 3 years. Things were getting worse and in 1994 I was put on
Methotrexate. I knew that I was "lucky" that I could tolerate these
toxic drugs. I have never had serious side effects. But I also knew that
I was coming to an end in treatment and things were only to get worse. I
hated the Methotrex and felt it was poison and I tried to avoid it if I
could. And besides I like to be able to drink some vine or beer on
social occasions, and I had to watch out all the time. It bothered me
being on this drug, and I didn't feel well either.
In October 1998 I went to Bangladesh with my boyfriend. He was posted
there for 6 months on a water management plan and I found work as a
designer for a local garment company. My rheumatologist would not give
me any medicine to take and I was sort of feeling fine. I thought it
would be wonderful to try to live without medicine for a while. And
compared to the cold weather here, it was a warm country I was going to.
I was an optimist, brought my natural remedies along, and thought
everything would be fine. (How could I be so naïve - I guess it was a
desperate hope). After 1,5 month my RA flared like mad. I could either
go home or take Prednisone. I took Prednisone and kept working. At the
end of our Bangladesh stay, we went on holiday to Australia. I have a
lot of family there. This was where I was introduced to the book "The
Road Back" by an aunt. She had a colleague, who had tried the AP
successfully.
I read it and I was convinced immediately. I have heard about a lot of
different cures, but this was so logical and I just had to try it. I
went back to Denmark, went to my rheumy, told him about it and that I
didn't want Methotrexate. He threw me out! Told me to think about it for
14 days or find another doctor. I know this is not an uncommon reaction,
but what a shock.
I can find nobody here, who knows anything about this, which has been
very distressing. I found a GP, who would give the medicine to me. Here
in DK health care is free for everyone, which is absolutely great not
having to think about money. We also pay very much tax. It also means,
when I visit the doctor, I can't demand much of her time. She hasn't got
time to go deeper into the matter, so I have been telling her, what I
need. She doesn't want to do the mycoplasma blood test, only the usual
tests. Until I found you, I only had the book and I find it a bit
confusing on exactly how to do.
I started in June with tetracycline 250mg Mon/Fri. I rose very quickly
in dosage, as I didn't feel ill from it. After 3 months I had to stop. I
felt terrible. Herx I guess, but I didn't know what was going on. After
a 1-month break I started Doxy 100mg once a week, very slowly. Now I
take it twice a week, and I take 2,5 mg Prednisone every day. But no
Cylindamycin as my doctor doesn't see any reason to give it to me (she
doesn't know what it does). My blood test are sooo much better, and I am
feeling a little better. Still have some joints, which are very bad. Is
it necessary to take Cylindamycin?
Sorry the story got so long, couldn't make it shorter. Regards from
Denmark. Sarah

A Toke a Day ....

2006-09-30 04:51:39

If you watched ER a few weeks ago, Nurse Hathaway was helping an ol' codger get
a hit. :))
(Can't recall many nurses offering to let me light up - LOL)
Mark
"From: S C <sasc@...
Subject: Re: Controversial...
Marijuana does control glaucoma and chemotherapy sickness and in some places is
used medically for this. "

Dog arthritis

2006-09-29 23:12:43

My old dog has arthritis in his hips pretty bad. I dont believe its rheumatic as
he seems fine and perky except for the hips. The other night one gave out and I
had to help him stand up. Yesterday he stood a lot and cried and moaned. I feel
soo sorry for him knowing exactly what that hip pain is like. I give him coated
aspirins altho sometimes it makes him throwup. Today I called the vet to see if
they had some narcotics I could give him for pain. He says all they use is a
newish nsaid that shows remarkable results on dogs. It costs 30$ a month and I
cant afford that. I really am upset over this. Dont know if I should put him
down as he still enjoys a lot of life and gets around pretty good. In fact his
arthritis maybe wouldnt hurt so much if he still didnt get excited and take
flying leaps off the porch in the morning. Seems even the veterinary costs are
getting out of sight for many of us.
disgusted and upset, Sarah
--
Clark Signs:
http://members.xoom.com/sclark/
AP Support Group:
http://www.geocities.com/SoHo/Gallery/6412/
Lots of arthritis and health links:
http://www.geocities.com/SoHo/Gallery/6412/supportlinks.htm

Happy.exe..ska virus

2006-09-29 21:51:57

This isnt a hoax. ZDNET has the link to this page about this worm.
http://www.geocities.com/SiliconValley/Heights/3652/SKA.HTM
--
Clark Signs:
http://members.xoom.com/sclark/
AP Support Group:
http://www.geocities.com/SoHo/Gallery/6412/
Lots of arthritis and health links:
http://www.geocities.com/SoHo/Gallery/6412/supportlinks.htm

A REQUEST FOR HELP

2006-09-29 14:19:31

Please respond to Myrna's enclosed request for help. Her email address is:
SForres104@...

abbreviations

2006-09-29 10:05:29

Here is the list that some of our member kindly made for us, that is linked to
on the supportlinks page
http://www.geocities.com/SoHo/Gallery/6412/Abbreviations.htm
--
Clark Signs:
http://members.xoom.com/sclark/
AP Support Group:
http://www.geocities.com/SoHo/Gallery/6412/
Lots of arthritis and health links:
http://www.geocities.com/SoHo/Gallery/6412/supportlinks.htm

Need advice

2006-09-29 00:38:03

As of the first of the year my HMO changed. In 1998 I had Basic Health coverage
through Providence and in 1999 it is through Premera Blue Cross. Since the
change I have lots quite a few benefits and the prescription benefit has changed
as well. Does anyone know what recourse I have? Who I should contact, etc..
Thanks.
Hugs, Jani

Controversial...

2006-09-28 12:27:47

Hi all. Well, here it goes. This is a controversial topic, and I don't want
to offend anyone, but I need to ask because I've heard so much about this
lately. This woman has a daughter I know who has Lupus. She says the only
reason she is in remission and stays that way is because she smokes Marijuana.
Then there's that woman who walked into her congressman's office in Washington
and lit up a joint to try and prove to him that it helps her medically. And
I've heard for quite a while now about how Marijuana should be legally
prescribed for medical reasons, and that these diseases we have may benefit
from a puff now and then. I know in California it's legal to walk around with
a little Marijuana in your pocket, although I'm not sure if it's legal to
prescribe it. I know that in most of the USA it is illegal. How about other
countries? Anyone know anyone who's tried it and it helps? How often do they
do it? I'd hate to be in a constant state of "duh". I wasn't sure where to
go with these questions, but I figured I'd give you guys a try. I was going
to ask my doc when I go see him next week, but he's so "traditional" he might
faint on me! Thanks,
Maria

Nutrasweet hoax

2006-09-28 10:17:54

Sometimes it's good to take a well balanced approach to these subjects.
Remeber the internet is a powerful tool for misinformation, perhaps the
most powerful tool ever. All the excitement in the group regarding
Nutrasweet dangers and it's possibly being a hoax reminds me of a story
I once heard about a man, who every time someone told him some food was
bad for him he would stop eating whatever it was. Soon he was down to
eating nothing but peanuts and raisons. Then someone told him peanuts
were bad for him.....
http://abcnews.go.com/onair/2020/diaz990210.html
j.

cytokine ellicitation

2006-09-28 06:52:10

CYTOKINES: Chemicals that are involved in growth regulations. They influence
both bone resorption and bone formation. Messenger molecules of the immune
system that can have beneficial and harmful effects. May play a role in MS
by mediating myelin damage and regulating auto-immune response.
Furthermore, TH1 type cytokines, such as IFN- , and pro-inflammatory
monokines, IL-1 and TNF-, contribute to the development of the joint
inflammations.
TNF-a dominates cytokine mRNA expression in lymphoid tissues of rats
developing collagen- and oil-induced arthritis.
Å. Müssener, L. Klareskog, J. C. Lorentzen and S. Kleinau. Scandinavian
Journal of Immunology, 42;128-134, 1995.
During the AP response the hepatic biosynthesis of A-SAA is up-regulated by
pro-inflammatory cytokines, and circulating concentrations can increase by
up to 1000-fold. Chronically elevated A-SAA
In the later stages of the AP response, A-SAA expression is effectively
down-regulated via the increased production of cytokine antagonists such as
the interleukin-1 receptor antagonist (IL-1Ra) and of soluble cytokine
receptors, resulting in less signal transduction driven by pro-inflammatory
cytokines.
This gets pretty thick but if you want to read the abstracts of these
studies you can find them at http://www.biochemj.org/bj/334/bj3340489.htm
Robert Root

Medications... in Spanish??

2006-09-27 22:21:07

Hi all. I'm corresponding with a woman with RA in Argentina who only speaks
Spanish, and she's taking these medications:
MUNOLIXOM
OXA RETARD
PARACETAMOL
Anyone know what they might be? I know the language, but not the medical
terminology, and definitely not medications! Thanks,
Maria

Present and accounted for

2006-09-27 21:55:36

You may not have seen this study , it is compelling evidence that when the
infection of mycoplasmas is in the first stage (the infection
stage) their presence is their demise. Robert Root upwards and onwards!!

probiotics

2006-09-27 07:59:22

So just what "probiotics" should I be taking?
Thanks,
Bob

A goodie to make you smile

2006-09-27 04:23:00

Subject: Addresses ARE Important
Consider the case of the Illinois man who left the snow-filled streets of
Chicago for a vacation in Florida. His wife was on a business trip and was
planning to meet him there the next day. When he reached his hotel, he
decided to send his wife a quick email. Unable to find the scrap of paper
on which he had written her email address, he did his best to type it in
from memory. Unfortunately, he missed one letter, and his note was directed
instead to an elderly preacher's wife, whose husband had passed away only
the day before. When the grieving widow checked her email, she took one look
at the monitor, let out a piercing scream, and fell to the floor in a dead
faint. At the sound, her family rushed into the room and saw this note on
the screen:
Dearest Wife,
Just got checked in. Everything prepared for your arrival tomorrow.
P.S. Sure is hot down here.

Pill boxes...

2006-09-26 21:39:36

Yeah, we're fishing for those little Mycoplasma buggers, and let's hope we
catch every one!
Maria
In a message dated 2/13/99 10:02:52 AM Eastern Standard Time,
briarwood@... writes:
<< Sort of a fishing tacke box.
Bev

My New Free eFax Number

2006-09-26 21:26:09

My new fax number is (815) 346-3893, it lets me receive faxes directly to email.
I received it free from www.eFax.com! This looks like a neat setup for those of
us without dedicated fax machines
Sarah
--
Clark Signs:
http://members.xoom.com/sclark/
AP Support Group:
http://www.geocities.com/SoHo/Gallery/6412/
Lots of arthritis and health links:
http://www.geocities.com/SoHo/Gallery/6412/supportlinks.htm

leaving for a while

2006-09-26 17:02:16

hi guys,
well i've finally made the decision to get off the list for awhile. i've
been on for two years, and will miss it greatly. but i'm so behind in
the book i'm writing and i need to get rid of some of my email
temptations. i know i'll stay in touch with some of you. and i hope to
be back. but i've been more of a lurker lately than a participator
'cause i have to scoot thru the messages so quickly. i've learned so
much from the people on this list!
please do send any great veggie recipes you have to my site at
http://www.dianechamberlain.com and come enjoy some of the recipes that
are already there. i'll be updating my site once a month.
also, i have a bunch of collagenics intensive care supplements that i no
longer need if anyone wants them at half price.
i'll miss you guys! take care,
diane

computer stuff

2006-09-26 09:52:23

I have a BB up on my sign site that is devoted to computer and vinyl, meaning
the vinyl cutting done by sign people. Please feel free to use the board for any
computer questions you might have.
http://209.207.141.196/bbs1/schwartz/wwwboard.sht
Sarah
--
Clark Signs:
http://members.xoom.com/sclark/
AP Support Group:
http://www.geocities.com/SoHo/Gallery/6412/
Lots of arthritis and health links:
http://www.geocities.com/SoHo/Gallery/6412/supportlinks.htm

kava

2006-09-25 20:55:35

Our local newspaper had an article today on "kava", a tea which seems to be
mainly used for anxiety and as a relaxant, but which the article also said is
helpful for the stiffness of RA. Is anyone familiar which this herb and its
effectiveness in these two areas?
Linda

My herx and Boswellia

2006-09-25 19:34:33

Hi group,
I've been reading your posts re: boswellia. I went to the health food store
last week and bought it along with Glugosamine Sulfate. I've been taking both
since last Wednesday, and since then, I feel a lot better. (Remember the pain I
had two weeks ago?)
I still hurt a bit, but it's so much better. I will continue Minocin at 100 mg
MWF instead of cutting it in half. It motivates me to continue the AP. I guess
there is hope after all...
Thanks for all of you who gave me some advice.
Mona :-)

Help Please!

2006-09-25 11:35:06

Hi Folks,
Just received this email from Sarah. I don't know anything about
Metronidozol or Flagyl - although at one time I was prescribed Flagyl for
something or other (can't remember). Can any of you help Sarah to help her
friend - it sounds sort of urgent.
Luv and hugs,
Jude.

SPRUNG

2006-09-25 05:50:42

Ha Ha, got caught out didn't I, yes I re-typed it, I printed the one out you
sent and couldn't find where I saved the original to. I did send you a message
to ask if you still had a copy and then lost that as well. Will try to do
better next time....Linda.

Hi Dr. Chiu :)

2006-09-24 19:45:18

Hi Dr. Chiu :) Glad to see you back. What a great email address :)
Chris.

Doctor in Singapore?

2006-09-24 15:26:15

Dear Group,
I know Bud is in Taiwan - anyone know of a doctor closer?
Thanks, Chris.

Need rheumatologist in Prussia

2006-09-24 14:03:39

Hi,
A patient of mine has shifted to the USA. She says:
"I will be staying in the King of Prussia area (about 25 min from
Philadelphia) Pennsylvania. the county is Delaware."
Is there an AP prescribing rheumatologist there?
-------
Regards, Dr Graham Chiu
Prospective Internet Observational Study in Arthritis
Home Page http://www.compkarori.com/arthritis/
Contribute at http://www.compkarori.com/arthritis/contrib.htm
Data Entry at http://www.compkarori.com/cgi-local/piosa.cgi

HELP!

2006-09-24 11:01:07

Uh, sorry...I have forgotten how to get off the list.....
too many messages.....can someone please e-mail me and let me know? Thanks!

Dottie's story

2006-09-23 23:03:33

Dear group,
Dottie has sent her story for our web page and I've just put it on there.
Thankyou Dottie for sharing your story and it's so good that you're doing
well :) There are a LOT of recovery stories on our web page now. I might
soon have to start thinking about changing the index format so the main
page doesn't get bogged down :)
Chris.

Echinacea

2006-09-23 18:23:41

Dr. Mercola, amongst many other doctors, says that root canals should
never be done as they introduce infection during the process. I guess you
could just have the tooth out as they used to advise?
The usual view of rheumatic disease is that it is 'auto-immune' and the
body is attacking itself for no reason. Therefore they offer drugs to
suppress the immune system. Our doctors' view of these disease is that
they are triggered by infection and the body is attacking that infection.
Therefore the antibiotics are used to gradually eliminate that infection
and meanwhile you boost the immune system in any way you can so that the
body can help the antibiotics do their job.
Echinacea is therefore excellent, as is goldenseal and healthy diet.
Anything to boost the immune system and get the body back on its way to
health. Echinacea shouldn't be taken continuously or it loses its
effectiveness. Pulsing the echinacea when needed works better.
Chris.

Antibiotic protocol terminology

2006-09-23 08:59:26

Dear group,
I've noticed in some recent messages that some people seem confused by
the terminology often used in the group.
The antibiotic protocol is the method used by Dr. Brown for rheumatic
diseases. This group coined the term 'AP' as a short name for the
antibiotic protocol.
However some people seem to think that 'AP' means minocycline. It
doesn't. There are many antibiotics that can be used for this therapy -
minocycline, doxycycline, erythromycin, zithromycin, ciprofloxacin,
clindamycin, lincocin and some others. All are 'AP'. The approach also
includes diet, supplements and healthy living, such as getting enough
sleep, avoiding unnecessary stress.
Chris.

Check out Marrow Transplant May Help Treat Juvenile Rheumatoid Arthritis

2006-09-23 01:41:07

<A HREF="http://www.pslgroup.com/dg/e50e2.htm"
May Help Treat Juvenile Rheumatoid Arthritis</A

AMA journal omits mention of study's link to Viagra maker

2006-09-22 21:25:03

AMA journal omits mention of study's link to Viagra maker
February 11, 1999
Web posted at: 1:29 a.m. EST (0629 GMT)
CHICAGO (CNN) -- The American
Medical Association admitted
Wednesday its journal failed to
disclose that the authors of a sex
study had been paid by the maker of
the drug Viagra.
A study in Wednesday's edition of the
Journal of the American Medical
Association reported that a significant percentage of American
men and women
experienced sexual dysfunction.
The journal did not point out that Edward Laumann, a
University of Chicago
sociologist and the lead author of the study, and his
co-author, Raymond
Rosen, had been paid by Pfizer Inc. to review clinical trial
data on Viagra before
the impotency drug was submitted for government approval.
Laumann was quoted as saying the study "gives us a base for
explaining why
we had this enormous response to Viagra."
Dr. Phil Fontanarosa, a JAMA editor, said the connection would
be noted in a
subsequent issue.
"It was an oversight on the part of JAMA," AMA spokesman Scot
Roskelley
said. "The authors did disclose it, the person who was looking
at it just didn't
catch it."
--
Clark Signs:
http://members.xoom.com/sclark/
AP Support Group:
http://www.geocities.com/SoHo/Gallery/6412/
Lots of arthritis and health links:
http://www.geocities.com/SoHo/Gallery/6412/supportlinks.htm

Herbs

2006-09-22 19:11:56

. "I heard Richard Schulzel, a master herbalist, say there are no
side effects from God's herbs. If you take too much you just throw up."
I think there are some dangers involved in suggesting this. Not all herbs go
well together. I think everyone should pay heed to which herbs they are taking
and in what combinations. I don't know Mr. Schulzel and I personally wouldn't
give .02 for that opinion. (and that's my .02 worth! :))
Mark

Just for Fun

2006-09-22 14:06:31

<A HREF="http://members.tripod.com/~Wildroses_2/greetings/greeting1.html"
Click here: Its A Bubble Bath
</A
Marilynn

DOCTOR

2006-09-22 10:08:56

Has anyone heard from Dr Chiu? Did he defect to the other group??
Doesn't he love us anymore?? Can't he find the new web site??? I miss
his sense of humor.
Cooky

Back from town

2006-09-21 23:54:36

Hi All
Looks like you have been busy while I've been away, I have 243 new messages to
read. I missed everyone. I had a pretty good time while I've been gone, even
got to fit in some fun, but I'm happy to be home and I am tired. I have another
lung capacity test scheduled for the week of the 22nd as well as a sleep study
and another trip to mental health. Al I asked about the oxygen and the doc
says after the tests, we will look into that possibility, thanks for sharing the
info. Also I found a Trader Joes to get more Met-RX bars.
More later as I remember.
Hugs, Jani

Joke

2006-09-21 14:09:29

A young woman brought her fiance home to meet her parents. After
dinner, her mother told her father to find out about the young man.
The father invited the fiancee to his study for a talk. "So what are
your plans?" the father asked the young man.
"I am a Biblical Scholar."he replies.
"A Biblical scholar. Hmmm," the father said. "Admirable, but what will
you do to provide a nice house for my daughter to live in?"
"I will study," the young man replies, "and God will provide for us."
"And how will you buy her a beautiful engagement ring, such as she
deserves?" asked the father.
"I will concentrate on my studies," the young man replies, "God will
provide for us."
"And children?" asked the father. "How will you support children?"
"Don't worry, sir, God will provide," replies the fiance.
The conversation proceeded like this, and each time the father
questioned, the young idealist insisted that God would provide.
Later, the mother asked, "How did it go honey?" The father answered, "He
has no job and no plans, and he thinks I'm God."

Food and Drug interaction booklet

2006-09-21 12:51:41

The Food & Drug Interactions brochure is now available.
http://www.natlconsumersleague.org/fooddruord.html
--
Clark Signs:
http://members.xoom.com/sclark/
AP Support Group:
http://www.geocities.com/SoHo/Gallery/6412/
Lots of arthritis and health links:
http://www.geocities.com/SoHo/Gallery/6412/supportlinks.htm

fraud?

2006-09-21 05:19:50

Here is the url of the consumer group to report any possible or suspected fraud,
including online, to. They have an 800 number also.
http://www.fraud.org/
--
Clark Signs:
http://members.xoom.com/sclark/
AP Support Group:
http://www.geocities.com/SoHo/Gallery/6412/
Lots of arthritis and health links:
http://www.geocities.com/SoHo/Gallery/6412/supportlinks.htm

ARTICLE ON FIGHTING THE WINTER BLUES

2006-09-21 04:29:57

Fighting the Winter Blues
Dean Ward MD
<<Winter is traditionally a period of celebration with family and friends.
Accompanying seasonal changes and high holiday expectations, it is also a time
when many people experience a case of the "winter blahs." For most this can be
just a sense of feeling down or mildly depressed. For others the onset of
winter may lead to more severe bouts of depression that can interfere with
ones ability to function at work or in the home. This reoccurring form of
depression, known as Seasonal Affective Disorder (SAD) usually begins in the
Fall, increases through the Winter holidays, and doesn't let up until the
return of Spring. Symptoms of SAD can include: 1 Extreme fatigue and lack
of energy 2 Increased need for sleep; sleeping much more than usual 3
Carbohydrate craving and increased appetite
4 Weight gain
While not completely understood, onset of SAD is related to the shorter
hours of daylight of Fall and Winter. SAD is generally more severe in the
Northern hemisphere. For example, in Florida, less than 1% of the general
population is reported to be affected by SAD, while in Alaska up to 10% of the
population may suffer from winter depression. Research suggests that, as
days get shorter and the amount of light reaching the eyes is reduced, our
"biological clock" is disturbed, resulting in a number of changes in our brain
involving the regulation of hormones, sleep and mood. One change involves the
amount of the pineal hormone, melatonin, that is released. Melatonin is
intimately involved in the timing of circadian cycles in our bodies. In
addition, disturbances in neurotransmitter function, particularly serotonin
and dopamine, are also involved in SAD. Treating SAD Mild forms of winter
depression may be helped by spending more time outdoors and exercising
regularly. Traditional forms of treatment for SAD are antidepressants and
counseling, but more effective forms of treatment are available, including:
1-Phototherapy resets the body's internal clock by exposure to artificial
light from a lightbox generating 3,500 to 10,000 lux. By comparison, ordinary
room light ranges from 200-700 lux, and the sun at noon on a clear day can
generate 100,000 lux. Phototherapy, when effective, can take up to two weeks
to start working. 2- 5HTP is fast becoming one of the most popular nutritional
supplements for elevating serotonin. Low levels of serotonin are known to
contribute to depression, anxiety, violent behavior and carbohydrate cravings.
5-hydroxytryptophan (5-HTP) can safely elevate serotonin production in the
brain without the dangerous side effects of prescription drugs. 3- St. John's
Wort, an effective and time-tested remedy for depression, is today one of the
most popular herbs in the world. Hypericin, the active ingredient in this
herb, has been shown in studies to inhibit the activity of monoamine oxidase,
which is elevated in depressed individuals. New research shows that St. John's
Wort may actually increase serotonin production. 4- Kava Kava (Piper
methysticum), used for centuries throughout the islands of the South Pacific,
has shown in research to relieve anxiety, elevate mood, relax muscles and
induce deep, restful sleep. Many people find it a safe, natural,
non-habit-forming way to relax. 5-Phenylalanine is an essential amino acid and
a precursor of the stimulatory neurotransmitters epinephrine and
norepinephrine. Phenylalanine also acts as an appetite suppressant and helps
to regulate a person's sense of well-being and maintain mood elevation. 6-
Tyrosine, like phenylalanine, is an amino acid precursor of several excitatory
neurotransmitters. Tyrosine may have advantages over phenylalanine for some
people, as it may have less effect on blood pressure and may be somewhat less
stimulatory. 7- Vitamin B-6 is essential for amino acid absorption,
metabolism, and transport, and to the formation and growth of red blood cells,
and for the utilization of many substances used by the nervous system. A
deficiency of vitamin B-6 is associated with irritability, weakness, insomnia
and nervousness.

More Dr.s

2006-09-20 16:28:29

There is a Doctor in Kalamazoo Mi. whose name is Dr. Doctor. When they page him
at the hospital it sounds like someone stuttered. Also in the area we have a Dr.
Peter Schnapp. I never warmed up to the idea of getting a physical from a
physician by that name.
Denny

bromelain

2006-09-20 15:35:38

I believe I read in Dr. Weil's Spontaneous Healing book that if you were taking
bromelain, it was important to take an enteric coated form so that it did not
break down in the stomach. Has anyone found such a form? I don't notice any of
the bromelain formulations that I've seen as being enteric.
Thanks,
Mark
RA 4/98 A/P 7/98
Mino (100mg/2x/daily)
http://members.tripod.com/~Mark_Holmes
RA Chat: http://members.tripod.com/~Mark_Holmes/RA/ra.html
mholmes@... ICQ # 18123139

LITTLE DID I KNOW

2006-09-20 10:07:10

I hope I'm not misusing the meaning of this group, just forgive me while I
laugh and let go of all the misery that has been going on this year. Forgot what
it was like to have a good belly laugh, (and believe me I have the belly for it
) big grin.....LINDA

STILL LAUGHING.

2006-09-19 23:16:52

The doctors names are really cracking me up, cant stop laughing. Good one
Donna , but think up to now Diane is in front with the obstetrician named Kuntz.
Wouldn't you think these people would change there name by deed poll its
not hard to do, but then we wouldn't be enjoying this moment in time would we.
Laughter is good for the soul.....Linda.

Need for other antibiotics

2006-09-19 12:26:30

I haven't started yet, but probably will soon if I continue to feel like this.
I had not been ill yet despite high RF, but have had my 1st bad month. Have
to wait to see if it was the Prosac I tried which I got an allergy to and the
allergy manifests itself as joint pain and the drug has a long half life and
stays in your system forever, so we'll see. But.....anyway.....I was wondering
what you do when you develop an infection that you would take antibiotics for
if you weren't on AP, for example a bad sinus infection or bronchitis etc. Do
you take another one or more of same or what? Also I need prophylactic
antibiotics for dental work due to mitral valve prolapse. I take tetracycline
beforeso what would I do? Any advice appreciated.
Also where do you get RA spes and what kind of supplement is it. I am hoping
to get on a new product by Metagenics called UltraInflammex which is for
inflammatory processes in the body and goes along with a healthy Mercola-like
diet. If anyone wants info, let me know. My M.D.-acupuncturist recommended
it.
Okay...here are more doctor's names:
MY urologist is named Dr. Stone.
I know two Doctors who are married and their last name is Doctor, so they are
both Dr. Doctor.
My husband knows two lawyers who formed a partnership called Quick and Tricky
and those were really their names, and actually why they joined together,
'cause they thought it was wild too!
Lastly, is there anyone on-line who started this treatment when they were
relatively early on in the disease regarding symptoms? If so, I'd love to
hear from you. I'm so scared of the herx,especially because I'm getting
around now. Thank you...
Oh, and lastly...what about the skin turning color. Is that common? That
freaks me.
Feel good, all.
SEG14@...
c
SEG14

Epidemic Polyarthritis

2006-09-19 09:55:31

Here is a new message board I found on epidemic polyarthritis. This board is
about the mosquito bite that results in a virus. It is designed for information
on
Epidemic Polyarthritis caused by Ross River Virus.
Anyone ever hear of this before?
http://members.boardhost.com/rrvepa/
--
Clark Signs:
http://members.xoom.com/sclark/
AP Support Group:
http://www.geocities.com/SoHo/Gallery/6412/
Lots of arthritis and health links:
http://www.geocities.com/SoHo/Gallery/6412/supportlinks.htm

Spanish

2006-09-19 00:30:44

Is there anyone out there who speaks Spanish fluently??
hugs,
lisbeth

(no subject)

2006-09-18 20:57:50

That was really good! Al

blood tests

2006-09-18 18:37:51

Hello everyone: I just got back my latest blood tests and am quite
discouraged. I would like to know if anyone else has had this same experience,
i.e. nine months ago my RF and CRP numbers had dropped so low I was almost in
remission. Now they have climbed back up again. Has this happened to any of
you? I have been on minocin for almost five years nonstop. Also, can anyone
explain to me what the following symbols, ASO and dsDNA, on the blood test
mean, and what are considered "normal" numbers? Thanks, and thanks to all of
you who responded to my last letter the other day. Shirley Hillard

? on Boswellia

2006-09-18 10:39:33

Hi Denise! Geoff Crenshaw here.
Most (but not all) of us on the RA SPES have been able get off the Pred
and stop aspirin, NSAID's, etc. The rest of this stuff you might be able
to get in a really good multi-vit, but if not they are all nutritional
support so other than the annoyance of feeling like a drug store, not
problematic.
Pau d'Arco is supposed to be helpful as you noted. Don't know that it's
a problem w/anything else other than Homeopathics - which you aren't
doing.
--
Regards,
Geoff Crenshaw, ACC

dr's names

2006-09-18 07:01:44

forgive me if i offend anyone, but when i lived in san diego years ago
there was an obstetrician there named seymour kuntz. honest.
diane
www.dianechamberlain.com

Dr Death

2006-09-17 21:24:55

After having a bad car accident the compensation doctor I was sent to was
called Dr Death, his secretary informed me it was pronounced Deeth. When I
finally got to see him, he was a dreadful man and lived up to his name, and even
looked like a mortician

Nutrasweet Dangers

2006-09-17 12:28:00

Skip,
I heard too that the recent Nutrasweet warning was one of those
internet/urban myths. You could check out
www.urbanlegends.miningco.com
see if it's listed there.
Even disregarding the last scare, I still avoid the stuff. I can do without
it. Stevia is a good herbal sweetener that can be gotten at the health food
stores. It's many more times sweeter that sugar. Our Food Co-op newsletter
had an article about it recently that was generally favorable, but they did
caution that it has alway been used in very small quantities.They recommend
not to go overboard with it. The article quoted a 1994 newsletter by Dr.
Julian Whitaker in which he stated that Stevia is not only non-toxic, but
has several traditional medicinal uses. Indian tribes of South America used
it as a digestive aid and applied it topically to help heal wounds. Recent
clinical studies have shown it can increase glucose tolerance and decrease
blood sugar levels.
I think many in our group use stevia and some know of some web sites with
more info on stevia.
Ute Reeves

Herxheimer vs Flare

2006-09-17 08:24:58

Hi Everyone
I recently saw some information on the differences between a
herxheimer reaction and a flare....differences in blood test results.
I have been having a difficult time lately and just got some blood
tests
back. I would like to see if I can determine from these results which
I am having. Could anyone tell me what I should look for please?
Heather
SS Feb 1998 - AP October 1998

Pill boxes...

2006-09-17 06:50:46

Hey Bev!
Lucky for me, my pets don't need pills! (I have 2 cats and a dog). I have my
morning pill box in the bathroom, so I remember to take it as soon as I get
up. Then my afternoon pill box has Minocin for MWF, and my evening pill box
(all the vitamins and calcium) is also in the bathroom so I take it before I
go to bed (The calcium makes me sick in my stomach so I take it just before
bed and it doesn't seem to bother me). Then there's the Miacalcin nasal
spray, next to the evening pill box. It's a spray for absorption of calcium
that you use in one nostril each night, so it's either on the left or right of
my pill box, depending what nostril it needs to go into that night. Then ...
there's the basket of goodies that I take with me to the table for meals.
Then ... there's the pill box in my purse, that also has my mealtime pills in
case I'm out somewhere for a meal. And last but not least, there's the
"extras" pill bottle in my purse, in case I get caught somewhere and realize I
forgot to take my medicine. Luckily I've found BIG pill boxes, so I manage to
fit them all in. Every once in a while when things change, I need to shift
stuff around so it all fits, but I've managed so far! It really is something,
what we do!
Maria

StJohnsWort fights virus &amp; bacteria

2006-09-16 21:28:21

--
Clark Signs:
http://members.xoom.com/sclark/
AP Support Group:
http://www.geocities.com/SoHo/Gallery/6412/
Lots of arthritis and health links:
http://www.geocities.com/SoHo/Gallery/6412/supportlinks.htm

stuff

2006-09-16 16:58:10

Well weather went from 74 to 20 but at least the storm wasnt bad, heavy rain
tho. Had a couple nights of more achies than in a long time in my hands. Sun out
now tho cold.
Did you see the thread on steves bb about the Handlettering BB? Heh heh,
interesting. Mike wrote me about it and said Donna really annoys him. LOL Im
trying to keep out of it but if you want you might slip in and post that we
talked about a handlettering board over a year ago for those of us who love the
letter form and handlettering.
later
--
Clark Signs:
http://members.xoom.com/sclark/
AP Support Group:
http://www.geocities.com/SoHo/Gallery/6412/
Lots of arthritis and health links:
http://www.geocities.com/SoHo/Gallery/6412/supportlinks.htm

USDA approves irradiation of red meat

2006-09-16 16:35:06

http://www.cnn.com/FOOD/news/9902/12/irradiation.ap/
--
Clark Signs:
http://members.xoom.com/sclark/
AP Support Group:
http://www.geocities.com/SoHo/Gallery/6412/
Lots of arthritis and health links:
http://www.geocities.com/SoHo/Gallery/6412/supportlinks.htm

MUST SEE THIS SITE. INCREDIBLE

2006-09-16 07:50:39

You must go to this site.Tell me how it works???
http://www3.mcps.k12.md.us/users/rsfay/magic/index.html
AOL member click here
<A HREF="http://www3.mcps.k12.md.us/users/rsfay/magic/index.html"
my Cave!!!</A

weather achies

2006-09-16 04:19:33

Well we went from 74 degrees to 20 degrees with a storm and weather change. This
gave me more achies than ive had for some time for a couple of nights. Also the
one night was stiffer than in a long time also.However not like I use to have
and they were only in my hands and arms. Probably because I had also done more
heavy work with them in the last week than in ages. One night I even took some
Tylenol to settle the hands down. I think this may have been OA pain as it was a
dull nagging ache. Now the suns out and the achies are passing.
Sarah
--
Clark Signs:
http://members.xoom.com/sclark/
AP Support Group:
http://www.geocities.com/SoHo/Gallery/6412/
Lots of arthritis and health links:
http://www.geocities.com/SoHo/Gallery/6412/supportlinks.htm

(Fwd) [Fwd: Friendship]

2006-09-15 14:56:03

Happy Valentine's Day to this wonderful group!
Sue :-)
P.S. Please see attachment
From: Hyatt120@...
Date: Fri, 12 Feb 1999 10:26:03 EST
To: Sue_Estridge@...
Subject: [Fwd: Friendship]
Thought you would like this....
[ Attachment (message/rfc822): 21641 bytes ]
---End of forwarded mail from Hyatt120@...
--
Susan S Estridge
E-Mail : sestridg@madison
Internet: Sue_Estridge@...
Phone : (704) 649-2411
FAX: (704) 649-2020

ARTICLE ON PROMOTING A HEALTHY LIVER

2006-09-15 14:55:32

Natural Protection for Optimal Liver Health: Proactive Hepatoprotection By
Lane Lenard, PhD <<Traditionally, liver protection has involved a long list of
passive don'ts: Don't take unnecessary medications; don't mix medications;
don't use street drugs; don't drink too much alcohol; don't eat too much rich,
fatty food; don't come in contact with many chemicals in foods and in the
environment; don't get hepatitis. The only recommended do is the standard,
"eat a healthy well-balanced diet." These are all useful, but they are not
enough. If you live in civilization today, it's hard to avoid contact with
environmental chemicals and pollutants, which the American Liver Association
considers to be a primary cause of the current rise in liver disease.
Hepatoprotective Nutrients Before you escape to a hermetically sealed
bio-sphere to grow organic vegetables, there is something valuable and
proactive you can do to protect your liver and keep it working efficiently far
into the future. There are a number of nutrients, herbs, and botanicals that
have been shown to: 1-Protect liver cells from damage 2-Stimulate the growth
of new liver cells to replace damaged old cells 3-Optimize hepatic function
These nutrients exert these effects by four overlapping therapeutic
mechanisms: 1-Augment antioxidant defenses 2-Improve detoxification
mechanisms of the hepatic mixed function oxidase system (MFO). 3-Diminish the
inflammatory products of arachidonic metabolism, prostaglandins, and
leukotrienes, which can promote free radical damage. 4-Stimulate hepatic
protein synthesis and enzymatic activities. As outlined and described in
detail below, combinations of standardized potency phytochemical antioxidants
and free radical scavengers can provide significant hepato-protective and
hepato-improving action: 1-Milk thistle (silymarin)
2-Globe artichoke (Cynara scolymus)
3-Curcumin

Stevia

2006-09-15 06:41:58

I thought you all might be interested in some information on stevia,
which is a plant used as a sweetener. I found this very interesting.
"Stevia is the name of a plant that has been used, in extract form, as a
safe natural sweetener by people in Paraguay and Brazil for hundreds of
years. Stevia is two hundred to three hundred times sweeter than
sugar. It has a slight licorice-like flavor that may take a little
getting used to for some people. Stevia is virtually calorie-free, and
does not trigger a rise in blood sugar level. It does not nourish
yeast, fungi, or other microorganisms in the gastrointestinal tract, but
it increases energy level and iproves digestion because of its ability
to stimulate the pancreas."
Jodi

Lupus flares from minocycline

2006-09-14 18:28:20

There is lots of talk about Lupus-like symtoms from taking minocycline.
Is this something I/we should be concerned about? How concerned? What
symptoms exactly are we talking about?
Is there a reason none of the many doctors I've seen have mentioned
this?
Thanks,
j.

UP-DATE ON DAVE

2006-09-14 16:28:25

Ethel was wonderful, she wrote with suggestions on what to do, but as it
was three pages long I expect that was why it wasn't sent to the entire group.
If anyone would like a copy of this I will be happy to fax or photo copy it off
to them.
The general run down was to check diet, teeth, pH levels, and to get a test
done which I haven't heard of before. You wouldn't believe it but when we went
to make the appointment with our GP to discuss all of these things, he was on
holiday and had a locum in. Until he comes back we have settled for changing his
minocyclin to doxycyclin, adding a little prednisone, and garlic tablets.
Visiting the dentist, watching the diet, and becoming hermits, so as not to
cause any stress. This we have done for two days, and the depression seems to be
lifting a little (we are hopeful)
I was given the name of some doctors, and rang them to talk about the
therapy, one was retired, one was scared of clindamycin, and the other one used
only vitamins now.
Dave is coming out of it I know as I can see a difference and its not my
imagination, as our daughters can as well, they thought he had given up, but I
wont let him, you have to keep fighting and if he cant I will do it for him. We
are going to have a stress free weekend, and wish the same for all of you.
Hugs from Linda.

Enzyme probs?

2006-09-14 13:45:39

Hello All,
I am wondering if anyone else has a similar problem... I seem to be
sensitive to bromelain and quercitan and other enzyme supplements. Every
time I take one of these supplements (I've only tried 3, all contained
bromelain and 2 also contained quercitan) I go into a flare. I've also
noticed that 2 or the supplements smell just absolutely horrible to me,
but not to anyone else (doesn't it mention somewhere on the web site
that if something smells bad to you that you shouldn't take it?) Anyway,
since I came out of my last flare over 4 weeks ago I have been doing
great! Greatly reduced pain and swelling, everything is better all the
way around. Last friday, after reading the enzyme article submitted by
Ray or Robert (sorry, I forget which) I decided to try one of the
complexes again. BAM, I was back into flare mode on saturday and sunday,
then monday I started clearing and by tuesday I was back to almost pain
free (I even forget to take my naproxen sometimes and I don't even
notice any increase in pain!) My wonderings are two. 1) Is anybody else
sensitive to this stuff? and 2) In that article I mention it talks about
how these enzymes can act as vehicles to carry the antibiotics to the
sites of infection. Could my flare have been a herxheimer due to
increased minocycline in the joints where there is infection?
Just curious....
j.

Confused Kiwi

2006-09-14 04:48:46

If anyone's still awake, could they please tell me which state is MO please:-))
Ta,
hugs,
lisbeth

Dr. Franco

2006-09-14 00:09:07

Hmmm....I am just SO confused!! Dr. Franco EXPLICITY told me that he ONLY
believes in AP for RA and Scleroderma. However, he offered me a vitamin
regimen which I plan on trying that consists of CO-EQ 10, Cats Claw, Fibroplex
(for the fibromyalgia) and Omega Fish Oils for the lupus inflammation. He
also told me that HIS WIFE has lupus and WAS NOT on AP. Wouldn't he have his
VERY OWN wife on the AP if he believed in it for lupus? He said AP causes
lupus induced hepatic liver and exasperation of lupus flares and symptoms.
But as I said before, he is a very compassionate and kind doctor who seems to
truly want to help his patients.
(P.S. I was diagnosed with lupus by Daniel Wallace who wrote the "Lupus Book"
so I know I have lupus!)

Mirkin Report/DMSO

2006-09-13 17:59:19

Hello, everybody. Had a couple quick questions. Someone the other day
mentioned the January '99 Mirkin Report (dealing with Crohn's disease). Is
there a way to get my hands on a copy of that? Is it emailable? Faxable?
Snail-mailable?
I have a 19-year-old nephew who is steadily going downhill with Crohn's.
I know there's been talk previously about DMSO and, of course, I wasn't too
interested at the time. (I should pay more attention!) I was wondering if
anyone has any experience with DMSO. I put some on my bad knee last night
(the knee that hasn't straightened in months).....and by morning it was a
nearly miraculous difference! The knee almost looked normal.....I actually
had bones again.....and no pain. Could hardly believe it.
Thanks for your input.
Lisa

Antibiotics in the early stages of Immune-difficient diaease Phase one" infection"

2006-09-13 09:28:33

Mycoplasmas and BCW Biochemical Warfare
These are the folks that deal
with the cures or band-aids for the walking wounded.
Robert Root Blessings and good reading
Since sensitive clinical tests for invasive mycoplasmas did not exist, we
suggested that treatment of GWS with antibiotics like doxycycline should be
considered.9 In fact, of the 73 Desert Storm veterans that we followed who
had most of the signs and symptoms of GWS and were able to find treatment,
55 indicated that they had good responses with doxycycline, and they
eventually returned to duty.9 Since the articles by one of us (N.L.N.)
appeared in Criminal Politics, we have been able to develop sensitive tests
for the presence of mycoplasmal infections in GWS patients and publish our
results in peer-reviewed medical journals.11 In a group of GWS patients and
their family members with GWS signs and symptoms we found that about
one-half of these cases showed evidence of mycoplasmal infections in their
blood. The mycoplasma-positive patients were placed on several six-week
cycles of antibiotics, and almost everyone has recovered. When the recovered
patients were retested for the presence of mycoplasmal infections in their
blood, they were now negative, indicating that the antibiotic treatments
suppressed the infection and allowed these patients to recover from their
GWS.11 We are now making some headway with the Federal Bureaucracy, and our
results and treatment suggestions will soon appear in the Federal
Practitioner, a medical journal for military and VA physicians.
Why would the U.S. Government deny that over one hundred thousand veterans
and their family members are sick with GWS? Why would they also deny them
adequate treatment, especially when a rather simple antibiotic appears to be
allowing them to recover from GWS? We feel that the reason that proper
diagnoses and treatments for GWS have been ignored by the Pentagon has more
to do with politics than medicine. During the initial stages of Operation
Desert Storm there were reasonable fears that Saddam Hussein would use his
extensive stocks of Chemical and Biological Weapons (CBW). In fact, the U.N.
Disarmament Commission documented that offensive CBW agents were sent to
forward positions in Southern Iraq, and Iraqi field commanders were given
orders to use them against Coalition Forces. The U.S. Department of Defense
and British Ministry of Defense deny that CBW agents were used in Desert
Storm, but there is extensive evidence to the contrary. For example, U.S.
Senate testimony of U.S. Army CBW officers indicated that over 14,000
chemical alarms sounded during but not before or after the ground offensive
in Operation Desert Storm. To counter this testimony, the Pentagon indicated
that each and every one of these was a false alarm. We and others find this
conclusion highly dubious. There were also indications that battlefield
records were altered after the conflict to support the Department of Defense
contention that there was no use of CBW during Desert Storm. Recently, the
military's top physician in charge of GWS indicated to the U.S. President's
Panel on Gulf War Illnesses that after much study it was now likely that our
Armed Forces were exposed to "low level" CBW agents during Desert Storm.
This is completely opposite from the statements issued just weeks earlier
from the Assistant Secretary of Defense that there was no credible evidence
of CBW release during Desert Storm. Thus the U.S. Government has completely
reversed its position on CBW release during Operation Desert Storm. We
always found the official denials on Biological Weapons release during
Desert Storm to be interesting, since none of the combatants had any
capability to detect Biological Weapons release in the Gulf. If we had zero
capability to detect Biological Weapons release, how could we conclude that
none were used? In our previous articles for Criminal Politics we
hypothesized that the unusual mycoplasmal infections that we were finding in
Desert Storm veterans' blood could have been Biological Weapons modified to
be more pathogenic and harder to detect and treat. Thus we have concluded
that it is extremely likely that CBW was used by Iraq during Operation
Desert Storm, its use resulted in casualties, including chronic illnesses
such as GWS, and our Government has since gone to some length to cover this
up and hide the truth from the American people.
We hypothesize that the reason that the Pentagon did not want the truth
known has more to do with our ability to fight an integrated Soviet-style
war (with conventional weapons and unconventional weapons such as CBW).
There was probably a threat issued to Saddam Hussein that if he used his
extensive stores of CBW on Coalition Forces in the Gulf that we would
respond in kind, or retaliate with our own unconventional weapons, including
Nuclear. Once the war was underway and reports of Chemical Weapons release
were being received in Washington, a decision had to be made to retaliate or
ignore the threat. We speculate that the Pentagon made the decision in
Washington that there was no CBW release to fit with their decision that
there would be no response to the reports of CBW use in the Persian Gulf.
Once we officially decided that CBW agents were not used in Operation Desert
Storm, even in the face of contrary evidence, policy was apparently
implemented to fit with this decision. In addition, the decision would also
be consistent with our questionable preparations to fight a Soviet-style
integrated war, and the publicity that would undoubtedly occur after the
conflict concerning our military readiness and the effectiveness of our
equipment in such a conflict. As mentioned above, we had zero ability to
detect and identify Biological Weapons in the battlefield, and we
hypothesize that the response of the U.S. Government to the appearance of
GWS seems like they have been trying to cover this up and not respond to
this crisis. Thus their response fits with the notion that the cause of GWS
and other illness among Desert Storm veterans had directly to do with CBW
warfare in the Gulf War and the denial of its use by the U.S. Government.
We feel strongly that the U.S. Government responses to CBW during Operation
Desert Storm may dictate our future vulnerability to CBW attack by aggressor
countries and terrorist organizations. Terrorists may ascertain that the
U.S. is particularly vulnerable to CBW, because they may assume from
Operation Desert Storm that we won't acknowledge CBW use and we won't treat
our casualties. Thus we hypothesize that a very bad precedent has been set
by U.S. policies in the Gulf War. An example of our questionable ability to
adequately respond to battlefield and terrorist challenges could be our
response to problems presented by GWS. It has taken years for the Department
of Defense and VA to acknowledge that the GWS patients have chronic
infections that they received during the Gulf War and that can be easily
treated with the appropriate antibiotics. Unfortunately, the way we as a
nation respond to war-related health crises such as GWS may dictate how
future aggressors and terrorists ascertain our weaknesses and plan their
strategies of attack

Dr. Franco-NO AP

2006-09-13 09:06:57

I was wondering if anyone here who has lupus has seen a Dr. Franco in
Riverside, CA. If so, can you please tell me if he prescribed AP for you? I
saw him recently and he told me he does NOT prescribe AP/Minocin for lupus
patients. I am so confused because I went all the way there to see him
because I was under the impression that he did.
I had a 2 hour appointment with him on my initial visit and he ran many tests,
including a blood test for mycoplasma and took numerous x-rays. He was very
kind, compassionate and very professional. I told him at this initial
appointment that I had lupus and was interested in starting the AP therapy.
He did not tell me at this time that he did not prescribe AP for lupus until I
saw him on the follow-up visit. Has anyone else had a similar experience with
him?

Antibiodics and mycoplasmas

2006-09-12 17:55:44

Identification of Mycoplasmal Infections in Gulf War Illness
Patients: Scientists at The Institute for Molecular Medicine have found
that slightly under one-half of the very sick Gulf War Illness patients in a
pilot study with the signs and symptoms of Chronic Fatigue Syndrome or
Fibromyalgia have chronic invasive infections involving certain uncommon
mycoplasmas, such as Mycoplasma fermentans (incognitus strain). Staff at The
Institute for Molecular Medicine have recommended that these infections can
be successfully treated with certain antibiotics, allowing the recovery of
patients who have been long-term disabled. Similarly, in ongoing preliminary
studies on Chronic Fatigue Syndrome and Fibomyalgia patients, we have found
that a subset of patients have mycoplasmal infections that can be
successfully treated with antibiotics, allowing patients to recover from
their illnesses.
Robert Root Blessings

Better than Mexico?? well here is the information.

2006-09-12 17:43:58

HOW TO PURCHASE ANTIBIOTICS LEGALLY OVERSEAS WITHOUT A PRESCRIPTION
From Robert Root: Blessings and gentle xx to all
by Prof. Garth L. Nicolson
The Institute for Molecular Medicine, Irvine, California 92619-2470
On July 20, 1988 the FDA issued a directive ("Pilot Guidance for the Release
of Mail Order Importation") that clarified the use of mail orders to import
quantities of legal drugs into the U.S. for personal use. Personal use
quantities are usually considered to be the amounts equilivant to three
months treatment. Over this amount is not considered allowable under the FDA
guidelines. Commercial distribution is not allowed, and the intended use of
the drug must be indicated in writing. The patient also has to identify by
name and address a licensed physician who will be responsible for the use of
the product, but a prescription is not required to buy drugs overseas.
Although this directive has been used to import drugs that are not approved
by the FDA in the U.S., we do not recommend that any drug that is not
approved by the FDA be imported for personal use using this mechanism.
FDA Requirements for Obtaining Drugs from International Sources
The FDA directive of 20 July 1988 permits importing drugs if the following
conditions are followed (Must be in writing and signed by the patient):
1. The drug must be purchased for personal use only (It cannot be given to
someone else).
2. The drug cannot be commercially distributed (It cannot be repackaged
and/or sold).
3. The amount of drug is not excessive (Maximum = 3 month supply)
4. The intended use of the drug is appropriately identified (For example,
for treatment of chronic infections).
5. The patient importing the drug affirms in writing that the drug is for
the patient's own use.
6. The patient provides the name and address of the licensed physician in
the U.S. responsible for the patient's treatment (The patient must be under
the care of a licensed physician).
Establishments engaged in Distributing Drugs Purchased in Foreign Countries
The purchasing of drugs like antibiotics from foreign distributors is easy
using establishments, such as the ones listed below. These establishments
deal directly with foreign distributors who can fill the orders and have
them delivered to you. The Institute for Molecular Medicine has no
relationship with these organizations, and this list is provided for
information purposes only. The Institute for Molecular Medicine cannot be
responsible for any dealings that you might have with these venders.
American Biologics
1180 Walnut Ave., Chula Vista, CA 91911
Tel: (619) 429-8200
Fax: (619) 429-8004
Private Health Care Research
9853 Bolsa Ave., KH-25, Westminister, CA 92683
Tel: (714) 775-5851, (800) 700-9632
Fax: (714) 839-4864
Web: www.privatehr.com

bad bugs

2006-09-12 07:28:19

Autoimmune Response May Be Linked To Congestive
Heart Failure
http://www.pslgroup.com/dg/e2872.htm
Robert Root

Boswellia

2006-09-12 02:45:00

Dear Lea:
Just picked up your E-mail about Boswellia. I started having active RA a
little over a year ago. When first observed my Rheumy wanted me on
Methyltrexate but having read the Arthritis Breakthrough & my symptoms
which were indicative of an infectious problem (it started 6 weeks after
spinal surgery) I convinced him of using Minocin & have been on it ever
since. My RA was 1240 & CRP was 9.2 intitally. The CRP has come down to 1.3.
I have pratically no RA pain, occasionally a small amount in my hands or
knees.
I have been on 500mg (3xday) of Boswellia for about 4 mos.; Dr.'s Best
Brand, which is combined with Curcuminoids. Bromelain 500mg (3xday), Ginger
540mg a tablet, 2 tablets 3xday & Minocin 100mg 2xday. Also a wide variety
of supplements megavitamins & minerals.
I found Earl Mindell's book "Supplement Bible" very helpful. Chris Adlard
sent us a list of physicians who use the AP, including some in CO.
Regrettably, have misplaced the list.
NSAID's, I know, cover up the symptoms, while allowing the disease to
continue to destroy my body. Dr. Mercola's diet is very important since it
helps to strengthen the immune system, the first line of defense of the
body. His diet can be found with his RA protocol on the Roadback
Foundation website.
Will be glad to tell you more if you are interested.
Henrietta in Texas
--
Happy Fins, Inc.
3613 Nebraska,
Amarillo, TX 79109
806-353-3662; FAX 806-351-2303

Fw: Nutrasweet Dangers

2006-09-11 23:49:34

Anybody seen this? I don't use aspartame anyway, but thought it might be
useful to pass on....

? on Boswellia

2006-09-11 17:30:54

How long before relief? Any brand work better than others? How
many/day? Do you take with food? Side effects? Contraindications?
My husband bought me some last night. I am a little hesitant to add
to the brew. I wonder at what point I will blow up LOL
I now take:
Ery tabs 333mg x 2 M-F
acidophilus/bif---3/day
ra-spes---1/day
8---aspirin
3mg.---pred.
vit. C---1,000mg
vit. E--800mg
selenium---200mcg
Ca. + vit D---1,000mg
homocsyteine---1 tab/day
CoQ 10 enzyme---75mg
evening primrose---1500mg
Seems to me I swallow more than that!!!
Has anyone tried Pau d'Arco? It is an antifungal, antibacterial,
and other anti's I can't recall :-))
Thanks for any suggestions. I wouldn't want to leave anything
uncovered.
Denise
NC

Hello from Denmark

2006-09-11 10:27:21

Hello everyone,
I'm so happy I found you. It's awfull lonely here in Scandinavia, when
you are on antibiotics. I live in Copenhagen, Denmark and I haven't been
able to locate anybody, who knows about the antibiotics (or want's to
know), so I am absolutely thrilled that I found this Internet address. I
almost administer the drug myself.
I have a lot of questions, but for now I just want to ask, if there is
anybody, who knows anything about AP and doctors here in Denmark or
neighboring countries? I have written to the American College and
American Academy of Environmental Medicine to get some addresses, but
mayby some of you would know something?
Regards from Sarah (RA 12 years)

minocin vs doxycycline

2006-09-11 01:03:45

Hi Group,
I went through a fairly high tech test yesterday at my doctor's office to
basicly see what supplements and what vit./herbs I need and don't need. Minocin
came back as a drug I should not take. Has anyone switched from minocin to
doxycycline? What kind of results have you had? Also, I would really like to
hear from folks who have taking doxy. from the beginning of their A.P.
treatment~how have you done??
Thanks!
Sue :-)
--
Susan S Estridge
E-Mail : sestridg@madison
Internet: Sue_Estridge@...
Phone : (704) 649-2411
FAX: (704) 649-2020

FW: Five Great Lessons

2006-09-10 21:25:43

Okay, now here's some inspiration. Hope everyone's having a great day.
Paula

FW: joke

2006-09-10 19:51:01

Here's your daily giggle, hope you like it.
Paula

Tampon Toxicity

2006-09-10 16:05:31

Leslie,
Thanks for the posting on feminine hygene products. I passed this along
to some women I know who have all complained at one time or another of
similar problems.
Thanks again.
--
Regards,
Geoff Crenshaw, ACC

Corticosteroid treatment increased risk of Vertebral Fracture

2006-09-10 03:05:50

Hello everyone,
something interesting to read.
Kathryn
http://www.pslgroup.com/dg/d3452.htm

FW: [rheumatic] A Few Questions Please..?

2006-09-10 02:41:53

I'll try to answer as best I can.
1. Diagnosed August/98 (had periodic mild episodes for about 15 years prior
to diagnosis).
2. Since December/98
3. 100 mg. 2 times daily, Monday, Wednesday & Friday.
4. Minocin
5. Had some problems with dizziness, occasional stomach cramps and diarrhea
(not so bad I couldn't stand it). Also had one yeast infection, but it
followed a very stressful day at work, which might have triggered it. I
have problems with blurred vision but I think my other medication
(Plaquenil) is the cause of that. I felt too lousy when I started the AP
to tell if I had a Herxheimer effect but I SLOWLY started feeling better.
I am much better now than 2 months ago.
6. I have been feeling better since taking the AP. The initial dizziness
is basically gone now and the stomach thing maybe happens once a week (I've
always had stomach problems so this isn't that unusual for me). The nice
side effect is my skin is better (guess that's why teenagers take it!)
7. Plaquenil (was taking this prior to starting the AP and want to get off
it) and Acidophillus (very important to take with AP -- make sure it's the
good stuff that needs to be refrigerated)
8. Pain in every joint except hips, swelling in most of the painful joints,
particularly knees (left knee extremely bad), hands and wrists, stiffness,
fever, extreme fatigue, depression. Frequently had trouble just getting
out of bed.
9. Yes, but they're much better and I can function. The number of problem
joints is less, the degree of pain and swelling is less, the stiffness goes
away faster, the fever is gone, the depression is much better and even the
fatigue has improved somewhat, although I still tire easily.
10. In all the ways listed in #9. It also gives me hope, which is very
important -- I was losing hope before and that was fueling the depression
and fatigue.
11. I feel it is helping, I wish it worked faster but at least IT WORKS!
12. I wouldn't say I follow the diet religiously but I try to stick as
close to it as possible. I really avoid sugar, greatly limit wheat and
dairy and eat lots of fruit and vegetables. I rarely have beef (treason
where I live, which is cattle country, but beef has always made me feel
lousy so this is no big change) but I'm trying to eat more fish as the fish
oils are supposed to be anti-inflamatory. I initially avoided nightshade
vegetables but they don't seem to react much with me so I sneak the odd
tomato. I drink tons of water, regularly have green tea (it's an
anti-oxidant) and only rarely have a glass of wine. I'll sneak the odd
treat but I try to do it rarely as I tend to react with stomach problems
when I do.
13. Yes, and it didn't do a great deal to help the RA for me but my mom has
been on the basic diet for a long time and it's helped to keep her RA
manageable to some degree without major RA drugs. However, she's now
considering trying AP as well.
14. Absolutely, YES! I was well on the road to total disability before
starting AP. I had been taking Plaquenil but it hadn't started to help me
yet and I refused to take any of the other "big drugs". I was beginning to
think my life was over and I'm only 39. The only thing keeping me going
was my 2 boys. Now, I'm able to function again, although I still have
discomfort (as opposed to extreme pain) and I still have to pace myself and
get lots of rest but I no longer spend every waking moment craving to go
back to bed.
Good luck with your decision. I hope this helps.
Paula

enbrel info

2006-09-09 14:21:40

the following is from the arthritis net newsletter--answers to questions
people had about enbrel from one of the immunex people. i'm posting it
here in case anyone's interested.
diane
http://www.dianechamberlain.com
".... I certainly hope that those of you who are interested
in specific medical information or guidance have been satisfied with the
assistance provided by the 1-888-4ENBREL service and/or the
1-800-Immunex.
One question asked about Enbrel "defeating a natural immunological
response of
the body" ... and I wanted to let everybody know that this isn't what
Enbrel
does ... which begs the question ... how does Enbrel work? The best
resource
to answer that questions is available at the www.enbrelinfo.com website,
in
which we have just launched the "people with RA" portion of the site. It
discusses the science of Enbrel and several patient services that are
provided
in association with the use of Enbrel.
A question regarding "maximum doses" was asked as well, and how the dose
level for Enbrel was determined. First of all, a "maximum dose" of
Enbrel
does not exist, and we are continuing to study Enbrel at various dose
levels. In short, determining the dose of Enbrel of any drug is a very
complex scientific and medical process, initiated first of all to assess
the safety of whatever new drug you're developing. With Enbrel, we
determined that it is generally well tolerated, certainly at the dose
level
we have at this point, 25 mg twice a week. Evaluating efficacy is
complicated as well, and in our clinical trials it was determined that
the
most reliable and consistent efficacious and safe dose for Enbrel was 25
mg. You may have seen in earlier studies that we tested a 10 mg dose,
which also worked and was safe. But the clinical data supporting the 25
mg
dose was much more compelling and provided a very sound medical basis
for
developing our phase III and methotrexate combination study with Enbrel.
Regarding the inquiry about whether or not Enbrel "stops" bone
degradation,
again that is a story that is yet to be completed. We are currently
conducting an early RA trial, comparing Enbrel head-to-head with
methotrexate and using x-ray technology to assess whether Enbrel stops
the
progression of the disease. Only then will there be a complete and
accurate answer to that question. So I need to ask you all to stay
tuned,
and plan to learn more this Spring. Currently, Enbrel is approved by the
FDA for moderately to severely active RA, and you should refer to our
package insert or to www.enbrelinfo.com regarding its complete FDA
approved
indication.
There will not be a pill form of Enbrel for a very basic biological
reason
-- Enbrel would be digested by the body as would any protein of its
molecule size. Remember, Enbrel is a biologic drug -- not a chemical
drug
like methotrexate. Products of biotechnology have a much more complex
manufacturing and development process that represents the type of
technology that most people don't truly understand and is difficult to
explain in a brief manner. A good book I read that is very helpful to
understand Enbrel and the entire biotechnology world is entitled
"Commotion
in the Blood" ... you might want to look it up on Amazon.com.
Regarding Enbrel and Minocycline and the question about any known
adverse
reactions, there haven't been any clinical studies that provide any
guidance on that issue and it is best for you to consult with your
pharmacist and physician regarding that questions. Feel free to call our
company's professional services department at 1-800-IMMUNEX for a more
detailed answer regarding your specific personal circumstances.
Likewise, regarding the question about "sterility" in men or women,
there
is no scientific and/or preclinical evidence that sterility could or
would
indicate that Enbrel would make a person sterile but it is important
that
you discuss matters such as that with your physician and health care
providers. They are able to consider your personal situation and
circumstances and provide a much better and more detailed answer, so
that
question is best addressed by them.
Good news regarding the safety profile of Enbrel. At this point, all
events reported to the company regarding Enbrel are consistent with our
experience in the Enbrel clinical trials and as noted in the FDA
approved
Enbrel package insert which does note a small percentage of allergic
reactions in people treated with Enbrel (to address the question from
Jessica at Palo Alto). While it would be inappropriate to discuss any
person's private medical history, Immunex remains confident in the
safety
and efficacy of Enbrel. With more than 17,000 people having started the
drug since launch we continue to monitor for long-term safety in several
hundred people who remain on our clinical trials. And we are on the
verge
of launching an 1,800 person heart failure study with Enbrel, in
conjunction with our co-development partner Wyeth Ayerst Laboratories.
I hope this summary is helpful, and I look forward to hearing back from
ArthritisNet about any additional questions or feedback. In fact, at
Immunex we are very interested in personal feedback about your
experience
on Enbrel. You can reach me through Tina Underwood, or e-mail me
directly
at warnert@...."

EPD

2006-09-09 09:00:04

My son is 11 and was diagnosed with ankylosing spondylitis Aug98. Since
then he has been on NSAIDs and methotrexate and has had 4 cortisone
injections, 2 in his affected knee and 2 in his affected ankle. The disease
now appears to be under control; ie. the medication controls the swelling
and therefore controls the pain (he doesn't have any). His doctor at HSC
(The Hospital for Sick Children in Toronto) does not believe in antibiotic
therapy. Does anyone have experience with antibiotic therapy for ankylosing
spondylitis, especially for children? I've also read recently about EPD
(enzyme potentiated densensitization) for arthritis. Has anyone used this?
Thanks for your help
Cecily.

I'm BACK!!!!!

2006-09-09 03:06:02

Hey! I am finally back on, re-subscribed and got my first messages today!
It has been a long time, much longer than I had anticipated. Didn't
realize the group had changed servers, plus my computer crashed right after
we moved and I lost everything that was on it. HELLO EVERYBODY! I can't
tell you all how much I missed you!
Now for an update: We left Washington in August, stumbled around Missouri
house hunting for about 5 weeks, played footsie with an incompetent
mortgage writer for another 2 months and finally moved into our own home in
December. Don't have health insurance here so I ran out of the doxyxycline
and was off of it for 2 months, OW!!!
Still don't have insurance, so I haven't been to a doctor in forever, but
was able to get the doxy at WalMart with my old bottle (even though it was
months old and from across country) The winter here has been great, much
better than the Washington winters ever were. I ended up going downhill
pretty good while off the doxy. My feet have begun to deform and I can't
walk for very long anymore, my left shoulder has gotten worse, But I
haven't taken any pain medicine for about 3 months now. The first 2-3
months here, I was taking pain meds fairly often again, but I didn't want
to keep doing that because they contribute to the joint damage. I finally
gave in and tried something else, that I had refused to try for a long time
because I had tried so many other things that didn't work. I went to
Wal-Mart and got a bottle of MSM with glucosamine and a bottle of vitamin C
to take with it. I take 3 capsules a day, and it has been incredible! If
I forget to take it for a couple of days, the difference is VERY
noticeable. Combined with the antibiotic treatment, I am doing pretty
good, like I said, no pain relievers need! And it is a whole lot cheaper
than some of the other stuff I'd tried.
I called Snooks a couple of months ago to check in and get some advise,
Thanks Ethel! I had developed Bell's Palsy and didn't know if I could do
anything about it. It is not the first time this has happened to me, but
it sure is lasting a lot longer this time. I have regained 90% of the
muscle control of my mouth, but still not much of my eyelid. At least I
don't smile lopsided anymore!
Well, this is kinda long winded already. I hope everyone is having a good
day.
Hugs!
Sherry aka-shutterbugp

A Few Questions Please..?

2006-09-09 01:03:18

I am about to start this AP and wanted to ask the group if they could honestly
answer some questions I have that only people like you could help with? I
hope you understand I really want this to work, but in my head, need to
understand more about it, and asking you guys and girls will make a big
difference. This will only affect the ones in the group that have RA or JRA
as this is what I have.
1. How long have you had RA?
2. How long have you been on the AP?
3. What was the beginning dosage?
4. Which Medication?
5. What happened the first two months?
6. What other affects on your health have you noticed?
7. Other Medications you take with the AP?
8. What symptoms in the RA were you having before the AP?
9. Are you still having RA symptoms?
10. How do you feel this treatment is helping?
11. Do you feel the treatment is not helping?
12. Do you follow the "diet" along with the AP religiously?
13. Have you tried the "diet" without the AP medications?
14. Are you better off now than before AP? How?
Thanks for everyone that doesn't mind helping me out with this. I know
everyone is different and nothing will work for everyone. I want to go into
this really knowing what to think and expect, so thus the questions. If you
don't feel like answering I understand completely. But if you do, thanks so
very much.
Karen

someone asked for IM info

2006-09-08 18:55:56

Once again, I have had computer problems and lost the e-mail I hadn't saved to a
floppy. Someone asked me for information I had received from the group about IM
injections of clindamycin. If that person would e-mail me again, I'll answer
quickly--before another computer problem turns up.
Linda

Minocin &amp; Vibramycin Together

2006-09-08 13:25:18

Hi--I used to be on the list but signed off for a while and am now back on.
It's nice to have the support of this group :) I started on the Vibramycin
(brand name for Doxycline) in February 1998. Now my dr has added Minocin to
my treatment regime. So I take 50 mgs of Minocin and 100 mgs of Vibramycin on
an every other day basis. I had made some improvement on the Vibramycin alone
and cut down from 10 mgs to 5 mgs of Prednisone :) But my mycoplasma
pneumonia IGG bloodtest came back positive and I was having a flare so dr
added Minocin to the treatment regime. I think I am herxing now! Does anyone
take both Minocin and Vibramycin and how do you find this combo? Any info is
appreciated. Thanks!
Carol E from NY

prednison

2006-09-08 08:03:48

Hello all,
Thank you so much for all of your wonderful help that you have given to
me this month ( especially Ethel, Colleen, Kelly, Cindi,Judy, and Bev and
the others who have helped by giving me advice) . It is really helping me
to get through this tough and painful time on the AP without giving up on
the doxicycline. I now know why my RA was always classified as "mild" . I
have seen the other side of it.
***Does anyone know if prednisone will effect the outcome of the AP?
I am going to have to go with five mg until I get to Riverside just to get
through the work day. I hate to take it but I am struggling way too
much and it is to the point of punishment to even stand on my feet much
less have to move!
You guys are wonderful! Thanks so much again for all of the advice.
Leslie

TAINTED TAMPONS

2006-09-07 23:31:53

Tainted tampons?
Dioxin fears prompt frank talk on feminine hygiene products
By Francesca Lyman
MSNBC
Feb. 10 The Curse. That time of the month. Although American women
dont retreat to menstrual huts, as they once did in some societies, many are
squeamish talking about their periods. But since reports of tampons tainted by
chemicals started surfacing, many have begun insisting on some frank talk
about the health and safety of feminine hygiene products and seeking out
alternative brands.
How healthy is Mother Earth?
Study flags new formaldehyde risks
Concerns raised on breast milk
Post your views on MSNBC's Health Bulletin Board
Return to Health front page
RUTH B.S periods had always been a nightmarish ordeal. The rural
Wisconsin woman suffered from severe cramps and pelvic pain, eventually being
diagnosed with endometriosis, a disabling menstrual-related condition that is
a leading cause of infertility.
It feels like theres a hot poker inside you, jabbing you in the gut,
Ruth says of the disease in which the uterine lining somehow escapes the
uterus and becomes implanted on other pelvic organs. Sometimes I end up in a
fetal position, writhing in pain.
Although rarely discussed in her day, endometriosis was the devilish
disease that put Marilyn Monroe in the hospital and caused her pain throughout
her life. In Goddess, biographer Anthony Summers quoted Marilyns first
husband saying, Norma Jean had so much trouble during her menstrual periods,
the pain would just about knock her out.
Instead of suffering in silence, though, Ruth who asked that her full
name be withheld for fear of reprisal by the chemical industry became an
activist, seeking to help herself and her fellow sufferers. She learned that
the causes of endometriosis, which afflicts anywhere from 6 million to 9
million American women, remain puzzling to researchers.
But new studies have begun to link the disease as well as a variety
of other reproductive ailments to environmental toxins, specifically dioxin.
Dioxin is a byproduct of many chemical, manufacturing and incineration
processes.
The lowdown on dioxin
Dioxin, which has been called one of the most toxic substances ever created
by humans, was recently classed as a human carcinogen.
One of the contaminants present in Agent Orange, the chemical is still being
studied for its health effects, particularly in disrupting the hormone and
endocrine systems. One study showed that 79 percent of rhesus monkeys
contracted endometriosis when exposed to dioxin.
Researching endometriosis on the Internet, the Wisconsin woman read
that one route of exposure to dioxin, in addition to widespread sources in
food, air and water, could be tampons and sanitary napkins products shed
used for 15 years. The chlorine used to bleach the wood pulp and rayon fibers
can leave behind traces of the chemical.
Ruth says she then launched her own Web page to try to get the word
out to women that dioxin is a problem and that there is dioxin in tampons and
that more testing is required to make them safe.
NOT ALONE
During this time, Ruth also found that she is not alone: A growing
number of women were beginning to fear that they may have been putting
themselves at risk if they used major brands of tampons. However, many more
werent and still arent aware of the issue, activists say, and neither
are many physicians.
There is very little regulation of sanitary products manufacturers are not
even required to inform consumers of the ingredients used in the products, for
example.
MARY LOU BALLWEGG AND KAREN GOULD
authors, The Endometriosis Sourcebook Not satisfied with the
manufacturers claims that their products contained negligible amounts of
dioxin, Ruth had her own Playtex tampons tested independently. The tests
showed they did indeed contain measurable levels of the chemical at a
personal cost of about $1,000. But few women are willing to go to the trouble
and expense of testing the products they buy, Ruth says.
Others agree. Most women assume these products are sterile (they are
not) and that government regulations protect them, write Mary Lou Ballwegg
and Karen Gould in an anthology of articles that comprise The Endometriosis
Sourcebook (Contemporary Books, 1995). Unfortunately, the authors state,
there is very little regulation of sanitary products manufacturers are not
even required to inform consumers of the ingredients used in the products, for
example.
During the last few years, several activist groups have taken on the
issue, and a number of articles, including one in New Yorks The Village
Voice, Pulling the Plug on the Sanitary Protection Industry, charged some
companies of deliberately ignoring the health risks. In 1997, Rep. Carolyn
Maloney took up the cudgel for the cause, introducing The Tampax Safety and
Research Act. The bill, which called on the U.S. Food and Drug Administration
to fund independent studies looking into the health effects of tampon usage
over time, never made it to committee that session, but is expected to be re-
introduced.
In response to these charges, the major manufacturers (Tambrands,
Playtex and Johnson & Johnson) counter that their products are perfectly safe.
The FDA, which regulates these products as medical devices, agrees.
There used to be negligible amounts of dioxin in tampons and other products,
says Sharon Snyder of the FDAs Public Affairs office. But now there is none
at all.
In response to consumer questions (and a rampant e-mail claiming
tampons contain asbestos which appears to all parties to be a hoax), the FDA
issued a December 21, 1998 memo, stating Chlorine is no longer used in
bleaching the pulp used in making tampons. This is universal across the tampon
industry.
ONLY TRACE AMOUNTS
John McKeegan, a public relations officer at Johnson & Johnson, which
makes o.b. tampons, says the company has reduced the dioxin in its tampons
to non-detectable levels. There are trace amounts of dioxins in many, many
things, he says. Theyre formed when theres fire. Its found in paper. But
it is always in minute, trace amounts.
However, questions about pulp bleaching continue to surface. On Jan.
26, Congresswoman Maloney wrote the FDA, charging that there is no evidence
upon which to base their statements that tampons are dioxin-free. The new
bleaching processes, known as elemental chlorine free and elemental free
(chlorine dioxide), still create and release dioxin, she wrote.
Maloney also sent around a Dear Colleague letter, saying that FDAs
statements were misleading. Exposure to this chemical has been linked to
cancer, immune system suppression, pelvic inflammatory disease and
infertility, and has also been linked with increased risks for endometriosis,
she wrote. Men, women and children are exposed to dioxin through the air and
the water. It makes no sense for women to have an additional exposure through
tampon use.
The dioxin exposure from tampons and feminine hygiene products are
thought to be relatively small compared to other sources, mos